My 17 yr old has ms.

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My 17 yr old has ms.

Postby Mamirocks » Sun Apr 28, 2013 9:25 pm

Hello,

My 17 year old recently DX with MS. It's been really hard understanding what's going on with him. It's been too long not knowing what he's been suffering from. Pediatricians, specialist all thought he was having anxiety attacks. It's good to finally have answers and medication soon to come.
I'm here to get support, learn and see what's next.
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Re: My 17 yr old has ms.

Postby NHE » Sun Apr 28, 2013 11:31 pm

Welcome to ThisIsMS. I'm sorry to hear about your son's diagnosis. Feel free to ask any questions you might have.
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Re: My 17 yr old has ms.

Postby dulceemira » Mon Apr 29, 2013 11:32 am

http://www.ncbi.nlm.nih.gov/pubmed/22926855
http://mscure.aussieblogs.com.au/the-bl ... eatment-3/
http://www.youtube.com/watch?v=erAgu1XcY-U
http://www.youtube.com/watch?v=yhUuf2QZd_E

Vitamin d3 is very important for ms..make the test 25 oh d3 to see his level of d3 and maintain his level up to 100 ng d3, he will feel much better
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Re: My 17 yr old has ms.

Postby DougL » Mon Apr 29, 2013 11:40 am

welcome Mami.

sorry you had to look for us but glad that you found us. we have a great group here - from patients, to caregivers, to Doctors.
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Re: My 17 yr old has ms.

Postby jimmylegs » Mon Apr 29, 2013 12:17 pm

careful.. vit d3 is far from the only nutrient issue in ms, and high dosing without balancing can be harmful to ms patients due to d3's effect on mineral status which is already questionable in ms patients. i'm the local poster child for d3-induced magnesium deficiency. if you want to enter the world of therapeutic nutrition for ms I have a related post in the 'regimens' section.
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Re: My 17 yr old has ms.

Postby Mamirocks » Sat May 04, 2013 7:18 pm

Again in the hospital.. This time his vision, says sees blurry and hurts with lights on. Walking with a gait, and trouble urinating. It's hard with two youngest sons ages 10 and 8. I have no family support who can help take care of them. He can't stand being around them. I just don't know what to do.
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Re: My 17 yr old has ms.

Postby lyndacarol » Sun May 05, 2013 11:00 am

I know that we are ALL glad to have you here at ThisIsMS, Mamirocks.

We don't have the answer to MS; when asked, we will offer our opinions and experiences.

In other areas, we also feel helpless because we do not have the perfect answer. It seems to me that your immediate problem is finding emotional support for you and your sons. With no family support, I hope you have a network of friends through work or church membership – a call to a local church minister could probably find you some help; even good neighbors are invaluable at times like this. Is there a social worker available through the hospital – someone who could inform you of services in your community that might help you? You might even call your local MS Society office and find out what services they know of.

All the best to you and your sons.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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Re: My 17 yr old has ms.

Postby Mamirocks » Tue May 07, 2013 11:39 am

Thanks so much for the support
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Re: My 17 yr old has ms.

Postby mmpetunia » Tue May 07, 2013 2:01 pm

So sorry to hear about your son being dx'd. Its hard at any age but the teen years are rough enough without this crap too. :( another thought re: resources and support for you and your family is to check with the closest MS center (usually a university hospital, such as ucsf) to you for support groups. Also, I think finding your local chapter of the ms society is a good idea too. They have information and support resources especially for the newly diagnosed. My second recommendation is to read anything and everything you can find on ms-- the disease process theories, treatments, etc. read it all, even the stuff you disagree with. On this board there are lots of links for research to get you started. It's probably so confusing and overwhelming right now but in your own time, researching and reading is really helpful to understand and move forward. Ms is a very contentious disease that has many theories. Along with those theories are treatments. Some are very unorthodox but knowing as much as you can will help you decide what is right for you and your family. And don't be afraid to ask questions here :)
Dx: 9/8/11 RRMS
OMS diet plus lean poultry
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18+ brain lesions and 6 spinal lesions
EDSS 1.5-2
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