I'm very sorry to hear about your son. Good luck to him with the Gilenya.
I had my heart rate drop during the first dose, but not enough to keep me overnight in the hospital. It came back up again.
My first dose observation, I sat in a comfortable chair about 10 feet from the nurses station. I was also about 3 feet from the 'crash cart' which has all the resuscitation equipment. I understood the risks, but I felt very safe. The nurses were clearly paying attention.
For me, this drug is easy to take. I don't like taking drugs, but since I've decided to take medicine, I like this one. I don't have side effects. I will have another eye exam in a month or so.
About price, I don't have blue cross/ blue shield, so don't know. I pay a small co-pay every month. This is not a cheap drug. If he has to pay a percentage of the price, it will be significant.