Optic Neuritis and possible cause for MS

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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Fri Jul 05, 2013 7:51 pm

The supplements my daughter takes:
4000IU of vitD/day plus Calcium 400mg/day which has 500IU vit.D
Vit.B12 – 2500 msg/day
Omega 3 Fish Oil – 1200mg/day
Vit.C, mulitvitamin, Vit.E just once a week. Once I have the levels done I can make adjustments. I am learning all about the foods that we eat and vitamins and trying to absorb as much as I can from our new diet. It’s a combination of Dr. Swank, Paleo and common sense diets. Low, healthy fats, everything in moderation, lots of veggies and fruits, some seeds and nuts etc... We have eliminated everything that is processed, junk food, fast food or that is not prepared at home. Of course when my daughter eats at her friend’s house she calls home first and we go through the choices together. We make adjustments later to balance the sins.
You are right saying that we have to take charge of our own health because nobody gives a damn. When my daughter was in hospital with the Optic Neuritis the doctors told her in 5 days she will be able to see. Didn’t happen. Then they told her it will take few more weeks. We came home, I put her on the new diet and in a day and half she recovered 95% of her vision. Coincidence?Maybe. But she wasn’t the only one on diet. I was too. I was eating only about 1/3 of the vegetables and my blood pressure dropped so much that I had dizzy spells. I was taking blood pressure meds for 4 years. I no longer have to take them. Two years ago I was diagnosed with Blepharitis, I no longer have it. I can finally open my eyes in the morning without holding my eyelids. I have still one more thing to work on. I’ll talk about it in my next conspiracy theory.
I am reading about the regimens information you’ve posted, it’s a lot to process but I need the base- the first test to see where she is now. I am going to pay visit to my doctor as well.
Do you think the supplements above are not going to hurt her?
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Re: Optic Neuritis and possible cause for MS

Postby THX1138 » Fri Jul 05, 2013 9:27 pm

jimmylegs sorry I didn't ask which level you were referring to.

These results are from the same day.

_______B12 _________

Component Results
Component Standard Range Your Value
VITAMIN B12 190 - 850 pg/ml 1129



_______Hemogram________

Component Results
Component Standard Range Your Value
WBC 3.4 - 10.7 10**9/L 6.8
RBC 4.20 - 5.90 10**12/L 5.08
HGB 13.0 - 17.0 g/dl 17.2
HCT 37.5 - 51.0 % 50.5
MCV 82.0 - 99.0 fL 99.5
MCH 27.0 - 34.0 pg 33.8
MCHC 32.0 - 35.7 g/dL 34.0
RDW 11.0 - 15.0 % 11.8
PLT 150 - 400 10**9/L 179

the MCV may have varied about .5 from using the Sublingual Methyl B12.

The nurse told me my B12 level and said, "Thats what happens when you take suppliments."
I was very afraid considering the danger from B12. NOT :-D
I get the impression that some medical professionals think that suppliments are dangerous like their drugs.
Just think, I could have had a score of 190 and been told that all was fine!
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Sat Jul 06, 2013 5:16 am

ah ok this 1129 was not a baseline test then? i'm not clear on the timing re supplements you've tried in relation to the #s above..
and yes, sadly, 190 would likely have passed as just hunky dory in most docs' view :S

some supplement forms and combinations are in fact risky.

celeste i'd watch it with the vit d3 above.

for one thing, not sure if 5000 is wise in an early teen. for another, d3 does help calcium absorb, but ca is only part of the picture. calcium is not a red flag nutrient for ms, and it competes with mag for absorption.

d3 needs to be balanced w magnesium and zinc. these are both nutrients to watch. esp zinc, when ON is in the mix.

just for future reference, can you link me up to product dtls for that vitE? E is one to be very careful with, to ensure you haven't got a synthetic form.

the blood tests will tell you the most about the best way forward. for both you and your daughter. the docs *must* agree to provide actual results. you need the info.
if you can't get buy-in for nutrient testing - with clear results - from the docs, then private testing is available in some locations.

in the meantime, food is a fantastic foundation going forward. GREAT to hear about such positive changes!! the whfoods web site has amazing charts listing healthiest food sources for the various trouble nutrients seen in ms patients. does your daughter like greek spinach feta pie? i have a recipe mod using chard and kale as well as spinach, plus all the fresh herbs. chock full of relevant nutrients and just delish :) i'll pm you a recipe if you think she will eat it :D
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Optic Neuritis and possible cause for MS

Postby want2bike » Sat Jul 06, 2013 7:34 am

We are all different so how much of the various vitamins and minerals we need is different. When taking supplements pay attention to how the body reacts. Best to start out slowly and increase dosage over time. All of the vitamins and minerals work together so it is important to have the right ratio. You are on the right path with diet and you can't go wrong by eating the fruits and vegetables. God put everything in them that we need in the right ratios. Vitamin D is very important for people with MS. We should be getting are vitamin D from the sun. You cannot overdose from the sun. Have your daughter spend 15 minutes in the sun each day. Have you had the vitamin D level checked? Most people with MS are low on vitamin D.

http://www.youtube.com/watch?v=yhUuf2QZd_E

http://www.youtube.com/watch?v=qeg-5NDyJ84

http://articles.mercola.com/sites/artic ... apers.aspx

http://www.naturalnews.com/020513.html
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Sat Jul 06, 2013 11:07 am

You are a genius Jimmy!!! You are absolutely GENIUS!!! Finally the puzzle pieces are falling in place. Read below.

So here is the second part of my theory of MS causes. Acid Reflux. Not just the one with heartburn and all the easy to identify symptoms but also the silent reflux. The one that many people don’t know they have.
When my daughter started preschool she started getting sick. Something like cold. Two weeks sick, two weeks okay. I started getting sick with her and I’ve noticed that whatever this was it involved a lot of post-nasal drip. Our sinuses were being attacked consistently for two years and nobody knew what it was. We tried cold medicine, allergy medicine, nothing helped. Finally after 2 or 3 years of this nightmare, I was diagnosed with H. Pylori bacteria. But doctors refused to treat my daughter because the symptoms she had were not symptoms of H. Pylori. It took more than a year of me convincing them she must have it as well and finally one of them tested her and she was positive for the stomach bacteria. After my treatment, I started having hard time with acid reflux, none of the meds worked, I had heartburn, my abdomen hurt, I had IBS and high blood pressure. My daughter on another hand started having bladder infections but only symptoms, pain, burning, problem urinating but there was no bacteria present in her urine. Just lots of white blood cells. I knew is the acid but her doctor said there cannot be any acid in the urine. They checked her kidneys and they were okay. I started treating her secretly with Pepcid Complete. All symptoms stopped. She was healthy again and she never had any bladder infections until last year.
Last year she also started having cough. Since her doctor again wouldn’t even consider acid as the reason for cough I would give her occasionally Pepcid. It helped again so knew this was acid.
After that she started having inflammations similar to viral infections. There was a fever and cough the same as the one from the reflux only much more of it. When she went to hospital with the optic neuritis she had a cough too, big one. Nobody was paying attention to it, but I was. In addition to IV steroids they gave her Omeprazole. The cough disappeared. She is still taking the medicine and has no cough but when one day she had a lot of tomatoes I asked her to sleep in my bed. Since I am acid reflux sufferer and I am taking prescription medication for it, I still wake up at night around 3 am and she did too. At first she started moaning, then coughing, then turning. She is suffering from acid reflux. Can acid cause inflammation in the body to the point of high fever? I know it does. And that’s the mystery virus that nobody diagnosed yet.
As you all know acid reflux happens when a person is lying down and the acid flows into the throat, usually during sleep. But what would happen if the acid leaked while you are head down in the pool? You are virtually upside down and if the acid is leaking when you are flat what is going to happen when your head is down? Cough? In the water? So the drop of stomach acid must go somewhere, right?
Do you know what happens to the body when you hold your breath? Your blood fills up with carbon dioxide which is acid and if you don’t start breathing, you can die. The acid will kill you. When you under water holding your breath, your blood is acidic and at that time your stomach acid gets into your bloodstream. After that it somehow penetrates the brain barrier and causes serious trouble. Maybe confuses the T cells and they start attacking the myelin or penetrates the myelin just like muscles and the T cells are trying to kill it doing damage to the brain. Maybe it gets to your lungs and that’s how it gets into the bloodstream, I don’t know how but I am 100% sure stomach acid is behind my daughter's illness.
And that’s the good news.
The bad news is that no scientist or doctor in this country will come out and admit it. Anyone who dares will be declared crazy. It would be humiliating to them to admit that all you need to keep your MS and other illnesses under control or prevent them is to take Protonix or Pepcid and keep your head above your waistline at all times.
Because the amount of acid in your body is strictly related to your diet, the Paleo diet worked and the Swank diet worked and any other diet will work too. Too bad so many people have so many lesions because now not only they have to deal with acid but also with the side effects of their neurological damage.
I am sure of it because I know my own child. She is my only child and I blame myself for my own stupidity. I should have insisted on medication for the acid long time ago. I was afraid to give her dose everyday because she was just a child. She would never have developed the lesions.
I posted her test results in one of my posts above. Have anyone noticed how low her Bicarbonate level was? It takes only a couple of tomatoes, a candy, or chip with vinegar and that level can go down in a second. Just imagine what it could do to her body. The reading may also not be accurate because in the morning when you take the test you usually have not eaten for 12-14 hours so there is nothing in your stomach to cause the levels to go down. Food is the cause of acid, not fasting so if the acid goes up the Bicarbonate level goes down.
Recently there were studies that fish gets confused while swimming in acidic waters, I think the fish is not the only one. The humans are swimming in acid as well.
Although my theory is based on my daughter and my daughter alone, Jimmy here provided a very valuable clue to the mystery. ZINC. Zinc can get rid of too much acid!!! Zinc cures ulcers. So, you see we don’t even need the Pepcid anymore!!! Zinc will do.
2 oysters a day can save my daughter’s life!!! Thank you Jimmy, you are brilliant, thank you, thank you!!!! I would never be able to figure this zinc connection out by myself. You just saved my daughter’s life. I know so!
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Sat Jul 06, 2013 11:46 am

ah ha, yes, zinc can kill h pylori and OMG have i ever had the acid reflux cough :S

watch those meds like omeprazole.. they can suck out magnesium and if taking high dose d3 as well, the effect would be worse.

watch with the oysters - they are a concern where bioaccumulation of heavy metals are concerned. a healthier (if sad) and densely nutrient-packed option is calf's liver.
more dietary zinc options: http://www.whfoods.com/genpage.php?tnam ... #foodchart
choose the highest mg per serving (ie venison lamb and beef)

if there's trail mix in the daily routine, see if you can make sure 1/4c of pumpkin seeds are part of the picture (just not my thing, unfortunately! - on the other hand, i just made hummus and added a 2 tbsp tahini, so that's adding to the daily zinc total too).

now zinc does thousands of important things in the body but that doesn't mean you should focus on it, to the exclusion of everything else. do pay attention to the other nutrients that are trouble for ms patients. for example my own prior issues with coughing also turned out to be acid reflux and it took me ages to realize it was actually a magnesium problem.

if you can order bloodwork for the key nutrients that is a fantastic place to start for sure! remember if you start to work on therapeutic nutrition, ie with supplements not food, that everything is interconnected. zinc has to be balanced with copper. when supplementing zinc you also need to keep an eye on iron status via serum ferritin. etc etc etc. foods have the balance right. so with supplements you have to try to mimic the ratios found in a healthy diet. it's doable, but you have to be scientific and careful about it.
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Sat Jul 06, 2013 3:49 pm

I already bought some oysters. I know the dangers so we are not going to eat a lot of them. But I am so happy today so I’ve decided to have a luau and have some oysters to luau with. I can do the pumpkin seeds but the calf’s liver will be difficult to get where I live. There are only 2 stores that carry chicken liver and none that has beef liver. But I am going to find it or order it from Omaha Steaks. I can buy it and freeze it. No problem. Money is not an object. We stopped buying junk food already, once we stop taking all the pills and supplements there will be plenty of money left for the right stuff. I hope we never have to take another pill ever again.
I am sure zinc is the key. The studies that tell us about the supposed dairy problem actually are pointing to zinc. People living by the ocean consume more zinc, they eat crabs, lobsters, clams, oysters and people inland don’t. If you have ever been to Asian buffet they have oysters and bunch of other seafood. Asians don’t get MS. People living near equator also eat more seafood. While omega 3 may play some role in their health, it is zinc that keeps them healthy. And of course zinc or luck of it plays the main role in the health of the rest of us. But I won't forget about magnesium or other vitamins and I am hoping you'll help me balance it all after I get the tests done.
But today Jimmy go and pop open a bottle of champagne, grab some oyster if you can because today we have a reason to celebrate. We are celebrating LIFE, HEALTH and... GOD.
I was born Catholic but stopped going to church as I grew older. When my daughter was born I didn’t feel like getting her indoctrinated in any religions. When she started middle school nobody could prepare me for this. My daughter is a great child, a real miracle- born next to ovarian tumor the size of my head that was growing in my body next to her. She was always very quiet and always respected but in middle school she was meeting some girls who treated her badly. We moved to this town 3 years ago so she didn’t have any friends from her old school. The behavior of some of her so-called friends didn’t bother her as much as it bothered me. This school year was little better but I wanted to protect her so I’ve decided it’s time for divine intervention. I found a nice church and we started going there. Few weeks later she had the tingling. And now the Optic Neuritis. So I got very mad at God. I thought I brought her to him for protection and what did I get in return? An incurable disease.
But after my anger passed and reality set in, I started having second thoughts, maybe there is some other reason for it. And today I got my answer. I’ll let you use your imagination here.
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Sat Jul 06, 2013 4:01 pm

having them won't kill you in one go! lol :) but forewarned is forearmed

i had trouble finding 'calf's liver' until i started looking for veal liver. but, it all depends where you are.

dairy creates zinc demand, so the studies that point to dairy actually ARE pointing to zinc :) at least in part.

as for the Asian countries you will also notice a relative absence of dietary gluten grains, yet another drain on zinc resources.

celeste, if i have one thing to thank this whole nasty scary process for, it's the massive learning curve, how life-changing it has been, and quite seriously how much better off i am and will be in the future. i don't imagine for a second that it would have been at all the same without this site in the picture. and it's very rewarding to be able to help others here and in 'real life' too :D
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Optic Neuritis and possible cause for MS

Postby Rick1866 » Sun Jul 07, 2013 3:35 am

So does this mean that getting more Zinc in my system I can get rid of 15 yrs worth of heartburn to finaly go away?
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Sun Jul 07, 2013 4:34 am

if you optimize nutrients that are off in ms there can be other health benefits you wouldn't associate w ms at all :) some damage can be permanent but heartburn sounds doable :) (there is probably more to it than zinc)
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Optic Neuritis and possible cause for MS

Postby want2bike » Sun Jul 07, 2013 10:12 am

God did not give us MS. We give ourselves disease when we put bad things in our bodies. God tells us in Genesis to eat the fruits and vegetables but we choose to eat man made food. We drink the water with fluoride and other toxins. We put mercury in our mouths. We let the doctors shoot foreign proteins and chemicals in our bodies to make us healthy. We eat the GMO foods because Monsanto tells us they can create a better food than God made for us. Disease a lifestyle choice that we make for ourselves. When we get sick we go to the doctor and say give me some more chemicals so I can feel better. If you understand what is making you sick and change your lifestyle you have a chance of getting your health back.

http://www.consumerhealth.org/articles/ ... 0303222823

http://y2khealthanddetox.com/mercfillings.html

http://www.youtube.com/watch?v=GgMuNCdP ... ure=relmfu

http://www.ebtherapy.com/newsletter_art ... foods.html
Last edited by want2bike on Sun Jul 07, 2013 1:11 pm, edited 1 time in total.
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Sun Jul 07, 2013 10:54 am

I do find this sort of thing fascinating. the whole free will debate etc. i certainly do agree that whole foods are the way to go. regardless of how we split hairs re what may have been intended for us by our various deities.

genesis 1:29 straight from Hebrew
and~he~will~Say “Elohiym [Powers]” Look i~did~Give to~you(mp) At All Herb Sow~ing(ms) Seed Which Upon Face~s All the~Land and~At All the~Tree Which in~him Produce Tree Sow~ing(ms) Seed to~you(mp) he~will~Exist to~Food

English variations on 1:29
http://www.biblestudytools.com/genesis/ ... mpare.html

and genesis 9:2-4 from Hebrew
and~Fearing~you(mp) and~ Trembling.in.fear~you(mp) he~will~Exist Upon All Life the~Land and~Upon All Flyer the~Sky~s2 in~All Which she~will~Tread the~Ground and~in~All
Fish~s the~Sea in~Hand~you(mp) they~had~be~Give All Treader Which He Life to~ you(mp) he~will~Exist to~Food like~ Green Herb i~did~Give to~you(mp) At All Surely Flesh in~Being~him Blood~him Not you(mp)~will~Eat

English variations
http://biblehub.com/genesis/9-2.htm
http://biblehub.com/genesis/9-3.htm
http://biblehub.com/genesis/9-4.htm
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Mon Jul 08, 2013 9:29 am

Yes, zinc is the key to keep reflux at bay. That’s what is for. But if you take zinc supplement and then eat lots of sugar you delete the zinc intake. You would need more zinc and that may lead to too much zinc which is harmful to your body. But instead of taking acid reflux meds which don’t cure your stomach and prevent many other nutrients being absorbed into your body zinc should become your natural acid reflux reducer. And if you adjust your diet it will cure your stomach for good.
Acid reflux should be called a disease because it impacts your body in unimaginable way. Kidneys are supposed to remove excess acid from the body but even the best kidneys may not remove the amount of acid you produce and the vitamins that you need may not get into your system because of your diet or acid reflux, or the medicines for acid reflux, so eventually your signals will not be transmitted and your body crashes. And you get sick. You are depleted of defenses inside your body, defenses outside your body, the poison that cannot be eliminated fast enough and you are a toast.
In my daughter’s case every single issue she had prior to the diagnosis was related to acid. She never had any health issues that weren’t related to acid. In the last couple of years luck of vitamins and minerals from her diet led her to the crash, so I believe acid/vitamin deficiency is behind everything. Look at Jack Osborne, the new MSer. He was on diet before diagnosis. First, he probably had acid issue because he was overweight, he depleted his vitamin reserves inside his body, then he lost that weight and many of the vitamins intake with it and kaboom.
Since I started giving my daughter oysters, as of Saturday afternoon she has so much more strength, she is singing, dancing, reading, laughing. I haven't seen her like this in a long time. Last night I gave her another 3 oysters and I had 5, I slept like a baby. Normally I would wake up in the morning and was already tired, and today I feel like moving things. So try the zinc because it will change your life. Do maybe 3 days regimen to up the zinc level a bit and then just maintenance. That's what I am going to do. We finish the oysters today and tomorrow we lower the intake and we'll see what happens. So good luck with it.
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Mon Jul 08, 2013 10:21 am

glad to hear you're both doing so well, celeste!
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Optic Neuritis and possible cause for MS

Postby want2bike » Mon Jul 08, 2013 1:25 pm

Glad your daughter is getting her health back. Too much acid is a bad thing. Excess acid is the cause of many diseases. Here is a link that explains it.

http://biomedx.com/microscopes/rrintro/rrintro.html
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