Optic Neuritis and possible cause for MS

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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Wed Aug 14, 2013 5:05 am

fat's very important for sure. i'll relay that study I found recently, which demonstrated how the mono to poly unsaturated fat ratio can affect vit d3 absorption. I might even be able to find the 80s study that showed how deficient polyunsaturated fatty acids results in absent niacin flush reaction. all kinds of interactions to think about.
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Thu Aug 22, 2013 8:22 am

Jimmy, I have my daughter’s test results.
Vit. D – 49 (vit.D3-43, vit.D2-6)
Calcium-9.5
Magnesium- 2.1
Vitamin B12 is high- 1158
Zinc-83
Everything is normal except B12 which is high. So, what do you think?
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Thu Aug 22, 2013 12:51 pm

heya, vit d3 looks good if the units are ng/ml.

re 'normal', it's just the lab ranges (not to mention the reference ranges) that are off. as usual.

magnesium is on the low side, assuming your units are mg/dl.
i tend to recommend serum mag status in the 2.3-2.7 range, but that is being quite conservative, staying within the established normal range but aiming for the top half.
there's research out there proposing 3.4 as an optimal serum magnesium status
the top of the reference range (which may not be the same as the lab) is only 2.7.
as i understand it the upper limit for serum mag is 4.8!

i don't know much about calcium except the normal range from wikipedia: 2.2-2.6 mmol/L (9-10.5 mg/dL)
it's not the simplest one out there to find healthy serum values for.

b12 sounds good

zinc should be more like 120. you want to ensure that serum zinc is a bit higher than serum copper so that the ratio works out to 1.1
also, keep an eye on serum ferritin if you ever get into supplementing zinc over any relatively extended time period.

hope that helps!
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Thu Aug 22, 2013 7:57 pm

Thanks Jimmy, except Vitamin D, calcium and cod liver oil with vitamin butter I am not giving her any supplements. Occasionally I give her multivitamin or something specific like vitamin E or C, low doses but throughout the day. So most of the vitamins she gets are coming from foods so I will just add some extra foods high in magnesium and zinc. I am pretty sure some of them were on low side before she went to the hospital but after hospital I attacked her nutritional needs like never before. And so far she feels fine. And me too. I got rid of all of my problems, except my age of course, and I don’t need pills anymore to keep me alive. We are waiting now to see an ophthalmologist, so when I know something more, I’ll let you know. Her MRI is in October. I am dying to know the results.
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Fri Aug 23, 2013 12:19 pm

good to see that the d3 status is not too high, it's very good, and the magnesium levels have not suffered too much in consequence, although you could stand to give those serum mag levels a significant boost.

i'm sure I linked you up to healthy mag and zinc food lists already but here they are again:
http://www.whfoods.com/genpage.php?tnam ... #foodchart **watch the mgs per serving, aim for 400-600mg per day, esp when supplementing with d3.
http://www.whfoods.com/genpage.php?tnam ... t&dbid=115 **aim for 15-20mg per day, more if eating sugar, dairy, gluten grains, high levels of phytates, etc.

glad you have been able to get off your meds and that both of you are feeling better!

as for age.. time is not our problem, it's our teacher :)

will keep an eye open for updates :D
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Re: Optic Neuritis and possible cause for MS

Postby shellyb21 » Sat Aug 24, 2013 4:08 am

I am issues getting my b vitamin injection pharmacy has been out only giving me few weeks at time :( it sucks sure hope your daughter gets better when young I never did lots of swimming now older I walk in pool
But not sure have had issue with migraines and issues since 15 not diagnosed till 1998 so 30 ish after 15 years with strange things happening that I didn't even know could be ms never heard of it :( I am still walking mostly with cane but to young don't want to feel old lol
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Sat Aug 24, 2013 10:21 am

Here is my new discovery.
Last night I went to my friend’s house and her family had some wine. Nice pink color, she told me it tasted good so I had some. It was a sparkling wine. Very sweet. As soon as I had my first sip I knew I am going to have a heartburn but nothing happened. I went to bed and in the middle of the night I woke up with burning pain in my throat. I thought that if someone would stick a flame to my breath it would burst in flames, like a dragon. I took immediately my acid reflux medicine but that didn’t help. Two hours into the ordeal, my throat was still burning. Finally, I went to the kitchen and got 2 slices of salami, small slice, maybe 1 oz of Gouda cheese and I started eating. And... just 1 minute later everything calmed down. I went back to sleep and slept until morning.
What do you think about it?
Here is more. Few years ago I was waking up with my eyes shut. The doctor diagnosed me with blepharitis and said there is no cure. I had this shut eye problem every 4-6 weeks. The pain, redness, discomfort was horrible and usually lasted 5-7 days. One day I was in Solvang (CA) and my eye was still hurting but I was wearing sunglasses so I didn’t care how I looked and there was a wine testing in one of the restaurants. I just got a little sip of wine and almost instantly the pain in my eye stopped. I went from table to table sipping wine. My eye recovered but during recovery I had absolutely no pain in it.
Then of course few weeks later I woke up with shut eye again. So I went to the store and bought a bottle of a cheap wine and started drinking. After having 1 oz. of wine the pain disappeared. And at night when I was sleeping there was no pain. Something in that wine causes pain to go away.
Eventually, I discovered eye gel and that helped until my daughter’s diet cured it permanently. But I used wine for any pain that I ever had. After gym workout, headaches, no matter what the pain, wine was always helping me with it. Many people with ms have pain, I think they should try it. It doesn’t take a lot but once you open a bottle of wine you should finish it in 2 days because it turns later into vinegar-like taste. There are very small bottles – 8 oz. so I was buying those but for the past 2 months I haven’t bought even one bottle of wine and I have absolutely no pain.
To be precise, I had no pain or discomfort of any kind since I started adding fat to our diet. Remember the broths? Meat, cheese, butter, beacon? We eat it all. The entire summer I haven’t gone to the gym and last week when my daughter went back to school, I went back to the gym. But I have not had any muscle pain what-so-ever!!! When I exercise I feel the muscles a little but when I don’t, there is no pain. And last night the salami/cheese fat killed my acid and the throat pain!!!
Get it? Fat = no pain!!! Just like wine = no pain!!! Can someone please try this? I think the fat is what controls inflammation and pain in the body. And this is probably why my daughter feels so good. The fat that she eats throughout the day keeps her body perfectly tuned. Can you imagine fat as a cure? I can, I think this is what we are experiencing right now.
How about the Mediterranean diet? I spend 2 years in Greece when I was younger and they start with an appetizer which is fresh bread dipped in olive oil and feta cheese. That’s where I had my first spinach pie. This is what makes them healthy. Olives and the oil dip. No pain, no inflammation = better health.
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Wed Aug 28, 2013 10:47 am

Bad news.
On Monday my daughter got hives in school. It was hot that day and the school is trying to save money on cooling so the temps inside classrooms are not really cool. For someone sensitive like my daughter that was enough. But I don’t think the heat was the only thing.
On Friday my daughter got a donut from her teacher, and the entire weekend was all about bad foods. Not just more carbs but sweets as well. Sugar. There was no warning sign.
The entire summer she was without hives even in Las Vegas in 100+ temperatures and now it’s starting again. I gave her double dose of Omeprazole, cooked some broth, gave her Omega 3 and she appears to be fine.
I know sugar is behind this. I also keep an eye now on vitamin C in the sweet form because she got her sugar from strawberries with added sugar and 100% orange juice which is loaded with sugar. It could be the combination of sugar and vitamin C. Also, she got hives after playing flute. Which again involves breathing. I was talking about her swimming under water and holding breath before getting optic neuritis and this is a second time when breathing is involved in inflammation so I cannot ignore it. So I am narrowing my suspicions to sugar, possible vitamin C from sweet things and breathing.
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Wed Aug 28, 2013 7:11 pm

sugar is a drain on zinc resources.. vit c increases iron absorption which can further impact zinc status.
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Thu Aug 29, 2013 8:57 am

Jimmy, now you’ve opened another Pandora box. Did you have to mention “sugar”?
I don't know if zinc has anything to do with this but sugar... definitely. And not high but low sugar.

I was looking at her schedule in school and between breakfast at home and school lunch is 5 hours. I give her snacks but on Monday she didn’t have the time to eat any snacks and she was covered with hives. The hives came after eating lunch. The music class was right after lunch. Yesterday she wasn’t able to eat her snack again and again she was covered with hives as soon as she took first bite. So this is definitely pointing to low glucose levels because on Tuesday she had her snack in between meals and she was fine. And that’s why everything is fine when she is at home because she snacks every couple of hours. And this changes things because the reflux could also be symptom of low sugar.
Since she was little she had to snack frequently. She was tested twice for hypoglycemia but the levels were always normal. I have the same thing. The most I can go without food is 3.5 hours. But when we don’t eat first thing in the morning, nothing happens. The countdown always starts with the first meal. I was tested once and the glucose levels were always normal, although I have never seen them; but the tests were always in the morning. In fact I was on a diet where my last meal was at 8pm and then nothing until 10:00-11:00am and I was feeling great. As soon as I had breakfast I had to start counting the time between meals.
But low sugar is very possible because before when we were on low fat diet we were much sicker and now eating more fat which takes longer to digest makes us feel better.
So even though our diagnosis says we don’t have hypoglycemia, we probably do. And since glucose is brain food if there is no glucose, the brain suffers. I think this actually could lead to MS. Because after so many years of starving the brain you ought to pay the price at some point.
But there is still many unknowns. For example she used to have hives when she was showering or when she had fever which points to heat. How the low glucose level, hives and heat go together, I have no idea. Low sugar and hives can go together, heat and hives too, but low sugar and heat? Any ideas?
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Re: Optic Neuritis and possible cause for MS

Postby jimmylegs » Thu Aug 29, 2013 7:20 pm

ummm ... was responding to your post... "On Friday my daughter got a donut from her teacher, and the entire weekend was all about bad foods. Not just more carbs but sweets as well. Sugar. I know sugar is behind this. I also keep an eye now on vitamin C in the sweet form because she got her sugar from strawberries with added sugar and 100% orange juice which is loaded with sugar. It could be the combination of sugar and vitamin C. "

knowing that her zinc is already down in the 80s when the 120s are optimal, and all that bad stuff would drive it down further... yes the simple sugars would have her blood sugar on a roller coaster. meanwhile but the low zinc would get even worse and throw the immune system for a real loop in the bargain.
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Fri Oct 18, 2013 4:38 pm

Hmmm... Sweet and Sugar in red... I don’t know what to say so I say nothing.
How are y’all? Missed me? I am back and I have some more theories to chew on. A little update on my daughter, she had her MRI done and her lesions are healing and there are no new ones. She has no symptoms except for the still unresolved optic neuritis. She feels great and doesn’t have any other symptoms. Of course it is too early to be sure but I am confident whatever we are doing we should continue doing because it’s working. This MRI was 4 months after diagnosis so I am hopeful the good luck will continue.
Last time we were talking about hives, still don’t know exactly what caused them but heat will be my guess. And the fact that she got them during or after lunch was probably due to the fact that the process of metabolism also generates heat so maybe this is what it was. A combination of heat and metabolism.
But the hives led me on a trip around the human body and I have a question, if people have heat hives or cannot tolerate heat from the sun what happens inside the body after a person eats or drinks hot/warm foods? For example if a person eats a hot soup or drinks a hot tea, it’s not just one sip but rather multiple sips of hot liquid. How the heat inside impacts the body? This is something I cannot find answer to and it really bothers me.
As soon as I finish typing I am going to post all about my new and interesting discoveries.
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Sat Oct 19, 2013 7:03 am

I was comparing the Swank diet and the Wahl’s diet and they are different but both keep people with MS on their feet until old age so that means both diets work. I studied the Paleolitic people and all I know is they were eating pretty much what they found, for example they didn’t eat spinach every day or in the amounts as dr. Wahls does. So that means meat is the most important food humans should consume. The other vitamins/minerals are stored in the body and used as needed. Of course it’s good to eat vegetables every day but I think it’s not the consumption but mechanism behind the vitamins/mineral deficiencies. I don’t know what the mechanism could be but I think there is a way of helping the body little more than just eating greens.
Based on my daughter’s symptoms long before she was diagnosed I narrowed it to 2 organs, kidneys and liver. They are interconnected so at this time I don’t want to choose one over the other. But I am sure one or both organs are implicated in ms. When they performed autopsies of people with ms they found too much cortisol, salt and nitrates in their bodies which would suggest kidneys for some reason are not removing some of the stuff from the body or making too much of it because all of the above are made in the body. In my daughter’s case was acid in urine that was removed but not neutralized enough.
Then, her constipations in childhood would suggest either not enough fluids or not enough bile. In our diet we eat vegetables regularly and every day but if we don’t eat enough then we make up on another day just like the Paleo people. But instead on concentrating on intake I started concentrating on removal of toxins because I think it is the removal that is not working properly. I think this maybe the problem with ms. There was a woman who had ms and had liver transplant on unrelated issue and her ms was gone after that and this would suggest that liver is behind ms.
I can’t precisely know or say what is it that is not working but I have made some changes to her lifestyle and I started giving her green or parsley teas to help kidneys remove excesses. I have also lowered her salt intake, I give her more potassium and after she has tea she must drink extra water. I also don’t allow her drink too much water in short period of time but she needs to drink water because I want the kidneys to remove as much toxins as possible.
I also give her cilantro tea for the liver, I am not sure if I can give her Milk Thistle but cilantro is very good for liver, I give her beets, walnuts, artichokes, green vegetables of course and she is doing fine. After I added fat to her diet she was never constipated but now I also noticed changes in her acne and I am waiting for the hives to go away as well. I think the hives maybe related to liver as well because other rashes are.
A while ago she had a cold and I immediately started giving her additional doses of all vitamins, D, B12, E, Calcium and my favorite – chicken broth. 3 days later the cold was gone, she never developed cough. I think that these kind of illnesses like cold, allergies are the ones that draw vitamins and minerals and if the person doesn’t get immediately more, and the toxic levels have accumulated inside, that can cause the formation of new lesions and that’s how the disease progresses.
Do you remember I was complaining about acid and my daughter’s cough at 3 am? The broth or slice of cheese before going to bed took care of that but now if I don’t give her anything before going to bed but she flushed her system she also is not coughing anymore. She doesn’t need the Omeprazole anymore.
To be continued...
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Sat Oct 19, 2013 8:05 am

Recently, I was reading about liver and found something very interesting, I almost hit the ceiling. The disease is called fatty liver disease. Non-alcoholic one. I think my mother had it. She was very active but always had a little fat around her stomach. One day she fell and hurt her hip. She was in the hospital for a while but later she was released home but she still had pain so she stayed in bed. She developed high cholesterol, edema and high blood pressure. She got more pills. Even though she eventually started walking again she never recovered from all the problems she was having. She died of liver cancer.
When I was young I also had a little fat around the abdomen. I exercised and it went away. I never had any problem with fat until after my daughter was born. I had difficulties losing weight because I had ovarian tumor which took 8 years for doctors to finally diagnose and remove. But I already wrote here that my problems started with H-pylori. I was so preoccupied with the bacteria that it took me until now to finally put this together. When I was diagnosed with H-pylori I was also put on multiple medicines: high blood pressure, two kinds of antibiotics and the stomach acid medicine. And that’s how my personal hell started. Just like my mother the meds changed my life to worse.
And my daughter too, she never took too many medicines until her H-pylori treatment. Her problems started around the same time. 3 generations of women healthy until they start taking medicines. So this is not only liver related but also medicine related. The meds are making the disease worse. This explains why I am feeling so good when I don’t take any meds anymore.
I am sure that everyone who has MS has taken multiple medicines prior to their attacks. Maybe not everyone develops MS after taking meds but you do because you are more sensitive, don’t have adequate amounts of vitamins/minerals and the only way to prevent the attacks is to stop taking meds, eat healthy diets, flush your liver and see how your lives will change to better. This is the genetic factor for MS and this is why MS is so different for different people. Take care of your livers and drop the meds or you will never get better. Diet alone will not help, you have to clean your body of toxins, and only then you will be able to stop the new lesions from appearing.
I mentioned this before if someone asked me why my daughter developed MS my answer would be: not enough fat, not enough water, not enough exercise. Both me and my mom were very active and we never developed MS, my daughter was never very active, me and my mom never drank too much water but we drank caffeinated tea every day, my daughter drunk very little water, no tea, not even decaf, but lots of soda and fruit juices. Me and my mom never ate too much fat but we had broth every Sunday, I stopped making broth after the H-pylori treatment when my doctor said I should change my diet to low fat diet. My diet was already low fat. Even today we don’t consume more than 50 grams of fat and I consider it a lot of fat. If I kept making the broths just like my mother did, my daughter may never developed MS. The fat from the broth would’ve protect her.
Just one last note: the liver loves caffeine, so drink your teas and coffees caffeinated.
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Re: Optic Neuritis and possible cause for MS

Postby Celeste485 » Sun Nov 03, 2013 10:38 am

We went to see my daughter’s neurologist and we were looking at my daughter’s MRI. The report says, her spine lesions are healing but the photo shows there are no lesions, there were lesions on the first one but there is no lesions showing now. Nothing. Disappeared.
The brain lesions have shrunk, on the report says the amount is the same as on the previous scan and that there is no new ones. There is no mention they are substantially smaller or healing. I don’t know what to think about this. The doctor however surprised me a lot. She said, my daughter should have next MRI in one year but of course she would like to have one sooner because” the sooner we see new lesion the sooner we’ll be able to give her the medicine”. Is it just me having the feeling that the doctor doesn’t care about my daughter’s condition? The child is showing a remarkable recovery and all the doctor cares is about giving her the medicine that is not even approved by the FDA for the treatment of MS patients. But she cannot show even one child who takes the medicine that would show the same level of recovery, or even less. No matter what we do or how we do it, no matter how much my daughter is better, the mafia will never acknowledge it.
If she was taking the meds they would say the meds are working but without them, they just can’t take any credit for it. And what about the MRI? Lesions that are not there are called as “healing”? I am going to wait one more year but if my daughter is not going to develop any new symptoms or lesions I am going to take all copies of the MRI and their translations and get a second opinion.
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