Mocamo wrote:Thank you for your responses. I was positive for IgM band 23 last year. My spinal tap was negative for lyme but positive for the O bands. I had another lyme test recently and it was negative. Despite that I started treatment because of the indirect tests that were indicative of lyme c4a and cd57 . My LLMD thought my symptoms were more than MS ( and I do too).
Although it seems like any symptom is explained as MS, my symptoms are much worse around menstruation which is explainable by Lyme but not necessarily MS. Also, i have heart (fluttering) and some other one off things that are more like lyme but could be MS. My main MS symptoms that got me diagnosed were migraine/dizziness episodes for last 14 years. Only got numbness and tingling last year and some swallowing issues (after I tried copaxone for 2 months and had an immediate relapse).
Basically my feeling is that MS is just a collection of symptoms and is not really a disease. I am determined to find my cause because this really sucks. I am sick of feeling 'off' but looking fine so everyone still expects the same from me.
I guess as I am writing this I realize I am willing to take a risk and be my own guinea pig to find my own cure rather than take MS meds. I don't know maybe that is crazy!?
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