JordanaDG wrote:So I had sort of posted here before when I had a feeling that I may have MS. I didn't post much after, because I hadn't been diagnosed.
Well within the last month I suddenly got a black dot in my vision which grew over day and my vision went grey (only in my right eye). Initially I thought it was optic neuritis, and family members who have MS said that ON was what lead them to be diagnosed with MS. Well the front of my optic nerve looked good, but they said whatever is going on is farther in the optic nerve about a cm back.
Well they said that my diagnosis is likely to be two things, but it will be he neuropthamologist that will determine what is going on. The doctors that were in to talk to me said that I should keep living as normal as possible but that the news that may be coming may be bad. I asked what their unofficial opinion was of what it may be and they said that they definitely can't know anything until MRIs and CT's can be done, but they expected that it was either MS or a brain tumor that may be constricting the nerve. They didn't want to scare me but they wanted me not to be completely shocked if I heard that being the result.
I don't know which I would rather have. MS or brain tumor, neither is a great diagnosis and neither is for sure, but when three doctors are trying to prepare me for bad news and look fairly worried I take it seriously. I am just here to formally introduce myself now that a doctor has said I should check up on it more.
So, my name is Jordana, I'm 18 and live in Ontario, Canada. I typically am a fairly optimistic, and outgoing person, so I do apologize for my introduction post being so depressing haha. I am usually an active person who loves doing hard labor. I was a firefighter and was planning on being a Police Officer, but I think that may be a bit of a stretch haha. I always try and find the humor in every situation, and try and brighten it up a bit.
So I will post more once they find out what is causing my spotty vision haha. Thanks for reading.
JordanaDG wrote:Hi Lyndacarol,
The one doctor is a friend of my Aunts so I asked for his honest opinion, I wouldn't hold a friend of the family accountable if his guess was wrong, it is after all only a guess of his. I wouldn't usually ask a physicians unofficial opinion because they typically won't give you one, they don't want to take a risk of telling someone they may have something so serious and end up not having it.
I did have some blood tests done, not sure which in particular but here's the ones I know. I don't know my numbers though.
-I do have Graves Disease which caused my Hyperthyroidism which is pretty severe
-Liver and kidney is normal (another thing I had to ask was, is it typical in MS to suddenly lose complete inability to urinate? When you do urinate you urinate a lot but still feel the urgent need to pee and have had many tests ensuring I didn't have a UTI? It hit me one day and I was admitted in emerg, catheterized and had a CT to check for any masses near the bladder. May I just say catheters suck!! Lol)
-Lyme tested negative
-HIV/AIDS tested negative
-Hep B and C tested negative as well
I'll get the neuro to refer me to the other tests, I'm going to make sure I get the fasting test this time too! I think a lot of the time they don't do all the tests needed to really see what's going on, like a lot of the tests you recommend I've never seen on my labs before.
Thanks for the list of tests to get a better perspective of what's going on!
JordanaDG wrote: I asked what their unofficial opinion was of what it may be and they said that they definitely can't know anything until MRIs and CT's can be done
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