Looking for answers...

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Looking for answers...

Postby Tamara84 » Tue Dec 17, 2013 9:33 am

Hi, my name is Tamara and I am a 29 year old mother and wife. I am writing b/c lately I have been experiencing some weird symptoms. I've been to MANY doctors in all different fields and still no answers. I have been doing a lot of research and MS is the only thing that really seems to make sense to me. Here is my story (a little personal)...

From the time I was about 15 I noticed that I had excessive tingling in my vagina. I went numerous times over the years to my GYNO to be tested for every STD known. My results were always negative and my pap smears were never abnormal. I just sucked it up and dealt with this annoying symptom. It could go on for 3 months at a time, 6 months at a time... or I could go 6 months without experiencing it. Nothing else really came up that I can think of besides the tingling in that area.

About a year ago I woke up with pain in my left eye and weird sensations on that side of my face. Almost like it's numb, but not quite. I know I'm probably not making much sense. I let it go on for months before seeking a doctor, only to be told I have very prominent eyes and it could be pushing on my lacrimal gland, causing irritation. I even had a orbital cat scan done to look for tumors, nothing. I do have very large eyes so I guess it made sense to me. Than the twitching and blurry vision started (sometimes a little bloodshot). I was at my sons basketball game last month and I couldn't even make out his face. He was no more than 15 feet away. Months after this I started getting weird sensations where my uterus is. I can only describe it as feeling like my organs are vibrating. I also noticed tingling in my lower back. Very excessive. Now every time I switch positions in bed or sit forward I get this tinging sensation that runs from my privates to my lower back. I also get the occasional tingling in my upper back and nose but not as frequent as I do in my privates and lower back. My privates have those sensations daily. My thoughts can be jumbled and many times I have to pause b/c I'm not quite sure how to express myself.

I don't know if any of this matter but thought I would add this in. I also have Poly-cystic Ovarian Syndrome (Which is a disease of the endocrine not the ovaries), IBS, PTSD, OCD, very bad anxiety. All of these have been diagnosed. I also wonder if I have Fibromyalgia. I'm in constant pain. Sometimes I feel like my flesh is burning. My doctor last mentioned that she wanted me to come in to test for Lupus. They have me going in circles so I just gave up with all doctors.


I just want answers and I'm not getting the help I am so desperately seeking. Thanks for reading! :-D
Last edited by Tamara84 on Tue Dec 17, 2013 11:14 am, edited 1 time in total.
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Re: Looking for answers...

Postby Tamara84 » Tue Dec 17, 2013 9:35 am

I also forgot to mention that my privates went numb for a few days last month. But it was on and off.
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Re: Looking for answers...

Postby jimmylegs » Tue Dec 17, 2013 5:57 pm

hi tamara are you in the states?
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Re: Looking for answers...

Postby Tamara84 » Tue Dec 17, 2013 8:31 pm

Yes, Pennsylvania.
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Re: Looking for answers...

Postby jimmylegs » Tue Dec 17, 2013 9:36 pm

ok cool. if you don't have any of these results from previous investigations, would you consider ordering one or more of these blood tests? these first two would likely provide plenty of info to work with.

http://www.lef.org/Vitamins-Supplements ... -Test.html
http://www.lef.org/Vitamins-Supplements ... -Test.html

could be linked to the pain, ptsd, ocd, anxiety, ibs, and pcos.
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Re: Looking for answers...

Postby amberfer » Thu Dec 19, 2013 8:23 pm

Hi Tamara, since you are in the States you have more options with doctors than some other countries. I'd REALLY recommend not giving up on doctors! Do you know anyone else with an autoimmune disease? I found my awesome neurologist by asking my friend which neuro she saw (and she had been through a few bad apples before she found the one she currently sees, who I see now as well!)

Please remember some people wait years for a correct diagnosis, with tests and theories. But you need to persevere, because you need to find out 1. what this is, and 2. how to treat it. Whatever you have could be causing permanent damage to your body. Please don't give up on doctors! As you shop around, keep all your records for any new doctors to see - request your MRIs on CD, that will avoid duplicate testing.
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Re: Looking for answers...

Postby jimmylegs » Fri Dec 20, 2013 3:29 pm

my doctor has been excellent re requisitioning bloodwork for me, but I am usually on my own in terms of figuring out which nutrient tests to ask for, and interpreting the results when they come in. luckily the science is out there. it's just not emphasized in the medical curriculum

Status of nutrition education in medical schools
http://www.ncbi.nlm.nih.gov/pmc/article ... rt=classic
"On average, students received 23.9 contact hours of nutrition instruction during medical school (range: 2–70 h)."
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Re: Looking for answers...

Postby Tamara84 » Sun Dec 29, 2013 4:20 pm

Thanks so much, jimmylegs and amberfer for getting back to me. A lot of stuff going on here. Boo!!! I don't know anyone else with an autoimmune disease but I definitely won't give up. Jimmylegs, my primary dr stinks and I'm currently in the process of looking for a new one. I'm going to email myself those links for my next dr. Hopefully he/she is much more helpful. I also forgot to mention I have had Geographic Tongue for about 5 years now and high bp. I'm falling apart for a 29 year old!
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Re: Looking for answers...

Postby jimmylegs » Sun Dec 29, 2013 5:20 pm

hi again, no problem :)

these resources allow you to act on your own, as long as you are willing to spend a few bucks on tests. even though there are excellent benefits associated with my local health care system, I do envy people with access to this kind of service:
http://www.lef.org/Vitamins-Supplements ... -Test.html
http://www.lef.org/Vitamins-Supplements ... -Test.html

if you get these done, I can interpret the results for you and let you know if any dietary changes or therapeutic supplementation would be in order.

geographic tongue! that's another vote for a serum zinc test :)

the following excerpts don't come from an English first language abstract, but you can still figure out what the researchers found:

The signification of the zinc preparation in the treatment of the children's migratory glossitis [geographic tongue]
http://en.cnki.com.cn/Article_en/CJFDTO ... 902009.htm
There were significant differences of the contents of serum zinc and copper between the test group and the control group... before the treatment. ... 41 patients received the zinc preparation treatment and a follow up for 6 months.
The concentration of serum zinc increased and the copper concentration decreased after 6 months' treatment ...
Geographic tongue can be treated effectively by the zinc preparation clinically.
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