Well, I was "officially" diagnosed about a month ago, but suspect I have had MS since my 20's due to some strange, unexplained neurological episodes.
Fast forward to age 44 yrs...I had an exercise related injury that was not healing, so was referred to my first neuro by my podiatrist. He was a complete disaster. When he first saw me he was "convinced" I had MS based on my symptoms alone...right leg/foot weakness..spasticity...so then sends me off for an MRI and it came back "negative" for MS. Then I was off for a lumbar puncture and was told that was "negative" as well. So now it was no longer MS..had to be some other rare neurological disorder? Talk about stress!
Obviously I did not feel comfortable with this guy, so requested all of my test results and off I went to an MS Specialist. Oh and prior to seeing my new neuro...imagine my surprise when I read through my test results and saw that my lumbar puncture was "positive"...I had 9 oligoclonal bands and an elevated Igg index. Granted I am not a Dr., but every MS site I had visited indicated that these were major indicators for MS. So not to rely just on my internet Dr. degree...I had my new neuro take a look and guess what...yes, my lumbar puncture indicated MS. Not only that, the MRI I had done..by my first neuro.. was not done correctly. Apparently, the "MS protocol" needed to be followed and it was not...so off I went for another MRI. This time, brain/spinal lesions were visible and that was that...I "officially" had MS.
So, that is my story. I now have a great neuro and I'm getting treatment. But man...talk about stress for many months...not having a clue what was going on...all thanks to one careless Dr. Lesson learned...trust your gut and get a second opinion immediately if a Dr. doesn't feel right.
I am certainly not happy to have MS, but in my case the months of not knowing were even worse