The Next chapter

New members should feel free to introduce themselves here

The Next chapter

Postby Serapis » Thu Dec 19, 2013 10:41 pm

Hey everyone

Just thought it was about time i started researching and getting in contact with others suffering from MS
Currently living in Perth AUS, still a young un at 22

I was diagnosed recently in november of 2013 with RRMS
Started with migraine like symptoms(never suffered from a migraine at all) flashing lights loss of balance, foggy vision, loss of left side vision(both eye's) and fovial(center) vision, slight numbness left hand side, splitting headache located on the left hand side of my head.
This continued for a few hours, once the headache ceased the visual disturbances didn't abate, nor have they changed since the first attack, went in for what my gp assumed could be a minor stroke, went in for MRI and CAT scans which showed 3 legions all on the left hemisphere
a month and a half later (about a month on betaferon) had my second attack. Bells palsy left hand side, numbness, troubles speaking and change of walking gait, weakness left hand side
Total of 9 legions now spattered over left and right hemisphere, none in brainstem thankfully. None of which have showed signs of improvement
Nor has sight improved,healthy optic nerves nor problems with the eye's.

Currently i am considering part time employment as my last job(Chef) is no longer and option and living by yourself with MS at least for me at the moment is no easy feat.

So just saying hi and hoping to learn quite a lot from here.
Life's not all that bad just struggling at the moment to work out coping mechanisms and mannerisms to lead a relatively normal life.

Hope to hear from you guys
Serapis
Newbie
 
Posts: 9
Joined: Thu Dec 19, 2013 10:14 pm
Location: Perth Western Austraia

Re: The Next chapter

Postby amberfer » Thu Dec 19, 2013 10:54 pm

Hi fellow newbie! I'm 26, also just diagnosed - same thing, life isn't that bad! For me, lesions on brain and spinal cord. I posted an intro just before yours! =)
User avatar
amberfer
Family Member
 
Posts: 41
Joined: Thu Dec 19, 2013 7:59 pm

Re: The Next chapter

Postby Serapis » Thu Dec 19, 2013 10:58 pm

just read it, Lets hope we can both get a workable career path :smile:
Serapis
Newbie
 
Posts: 9
Joined: Thu Dec 19, 2013 10:14 pm
Location: Perth Western Austraia

Re: The Next chapter

Postby amberfer » Thu Dec 19, 2013 10:59 pm

Oh I'm not looking into careers, but my dream is to be a mom. I know lots of people with MS have children, but I am disabled with a wheelchair and that seems it would be a challenge for raising kids! So for me, it's working out my "career" goal of motherhood! =P
User avatar
amberfer
Family Member
 
Posts: 41
Joined: Thu Dec 19, 2013 7:59 pm

Re: The Next chapter

Postby Serapis » Thu Dec 19, 2013 11:03 pm

Motherhood IS a full time career, one of the best you can achieve.

I really hope you'll get there with as little possible problems as well :)
Serapis
Newbie
 
Posts: 9
Joined: Thu Dec 19, 2013 10:14 pm
Location: Perth Western Austraia

Re: The Next chapter

Postby lyndacarol » Fri Dec 20, 2013 9:54 am

Serapis wrote:Hey everyone

Just thought it was about time i started researching and getting in contact with others suffering from MS
Currently living in Perth AUS, still a young un at 22

I was diagnosed recently in november of 2013 with RRMS
Started with migraine like symptoms(never suffered from a migraine at all) flashing lights loss of balance, foggy vision, loss of left side vision(both eye's) and fovial(center) vision, slight numbness left hand side, splitting headache located on the left hand side of my head.
This continued for a few hours, once the headache ceased the visual disturbances didn't abate, nor have they changed since the first attack, went in for what my gp assumed could be a minor stroke, went in for MRI and CAT scans which showed 3 legions all on the left hemisphere
a month and a half later (about a month on betaferon) had my second attack. Bells palsy left hand side, numbness, troubles speaking and change of walking gait, weakness left hand side
Total of 9 legions now spattered over left and right hemisphere, none in brainstem thankfully. None of which have showed signs of improvement
Nor has sight improved,healthy optic nerves nor problems with the eye's.

Currently i am considering part time employment as my last job(Chef) is no longer and option and living by yourself with MS at least for me at the moment is no easy feat.

So just saying hi and hoping to learn quite a lot from here.
Life's not all that bad just struggling at the moment to work out coping mechanisms and mannerisms to lead a relatively normal life.

Hope to hear from you guys

Welcome to ThisIsMS, Serapis.

Elsewhere you have described your concern about continuing your career as a chef. Have you considered writing a cookbook with gluten-free recipes? Here in the US, this is a growing area of interest. It will become even more important if the doctor I heard recently is correct, that one person out of two has gluten sensitivity. The major celiac disease centers are investigating a link of wheat/gluten to autoimmune diseases. I think it's has implications for us with MS. By the way, have you been tested for gluten sensitivity? Or low magnesium? – Headaches/migraines are listed as a symptom of low magnesium.

Is there a CD center "down under" that could use your help in their research and in developing gluten-free recipes?

The Pioneer Woman (Ree Drummond) started with a food blog and now has a TV show and at least two cookbooks on the market. Isn't there a well-known "food person" in your part of the world (seems to me her name is Donna Hay)? Contact her – does she write gluten-free recipes? Could she use you on her staff?

All the best to you.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
User avatar
lyndacarol
Family Elder
 
Posts: 2255
Joined: Thu Dec 22, 2005 4:00 pm

Re: The Next chapter

Postby Serapis » Fri Dec 20, 2013 9:48 pm

Thats not a bad idea Lyndacarol
My family has a history of both gluten intolerance and lactose intolerance none of which i suffer from thankfully and i do enjoy writing

As for the cd center i'm not sure but i do still have a nice network of foodie friends, would there be a place here for recipe's and such concerning this here? at least for the meantime
Serapis
Newbie
 
Posts: 9
Joined: Thu Dec 19, 2013 10:14 pm
Location: Perth Western Austraia

Re: The Next chapter

Postby jimmylegs » Fri Dec 20, 2013 10:36 pm

I lived in perth for 5 mos a few yrs ago, right after i got dx'd.
loved it.
sunset at mettam's pool <3 :D
welcome to the forum
jimmylegs
Volunteer Moderator
 
Posts: 8944
Joined: Sat Mar 11, 2006 4:00 pm

Re: The Next chapter

Postby NHE » Sat Dec 21, 2013 4:25 pm

Serapis wrote:Thats not a bad idea Lyndacarol
My family has a history of both gluten intolerance and lactose intolerance none of which i suffer from thankfully and i do enjoy writing

As for the cd center i'm not sure but i do still have a nice network of foodie friends, would there be a place here for recipe's and such concerning this here? at least for the meantime


The diet forum would be a great place to post recipes. Feel free to start a thread. Image

http://www.thisisms.com/forum/diet-f9/
User avatar
NHE
Volunteer Moderator
 
Posts: 3297
Joined: Sat Nov 20, 2004 4:00 pm


Return to Introductions

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service