Dove13 wrote:Your offer to answer questions is so generous! I just want to welcome you and say thank you.
There was a post I read that mentioned flouresent(sp?) lights. I noticed problems in stores with those lights--they hurt my eyes and made me want to leave after only a few minutes in the store. I never connected that to the ON. Currently i am still (hopefully) recovering from my initial bout of ON (which also got me diagnosed as MS). Did the steroids and have gone from blind in that eye to maybe 40% vision. A big improvement in my book! I was so excited to be able to drive again!
Just found this site, also. New all the way around. LOL Odd to be a newbie at 55.
Welcome again EyeDoc and a big thank you for all the time you are taking in answering everyone's questions.
wbowen wrote:Hello Eyedoc,
I also wanted to say welcome...and I'm sorry. You are the first physician I have seen here with MS...I am a pediatrician and was diagnosed with MS in September of '02 and had to retire due to fatigue and concentration problems in March of '03...I had only been out of residency for 3 years when I was diagnosed. I did pretty well other than the fatigue for about 18 months and thought I was going to have a pretty "mild" case of MS if there is such a thing...but then things began to worsen. Quite a bit of sensory problems...intermittent weakness and spasticity in legs. Since February of this year I have developed ON in the right eye...which was pretty brief. Then I developed a VI nerve palsy resulting in diplopia that lasted 3 months (just getting over that) followed immediately by ON in Left eye. I worry more now about my vision than anything else. I have tried to avoid using steroids unless absolutely necessary (strong history of osteoporosis in the family). Any evidence that the long term outcome of my eyes would be any different with steroids.
I wondered if you have been able to continue working....developing a "new identity" has been pretty tough...worked a long time to get through med school/residency and now I have pretty much just had to distance myself from it completely. Hope you are doing well!
God Bless, Wendy
mick_b wrote:Hi Ed:
I just read your post and wanted to say hi.
As you can see you’re not alone. There are great people here, all trying to figure out how to adapt and function in this new MS life. Including me, although I’m new here.
I was dx’d at the Cleveland Clinic in 2001 with PPMS. I entered the denial phase immediately and stayed there for a long time (probably years). I still go back from time to time. Like they say, you don’t go thru the stages step by step, you go in and out of each one several times until you can absorb what is happening. The toughest thing for me was accepting the fact that I really couldn’t control a lot of what was happening. The truth (as I see it) is that I never had the control I thought I had anyway. I was a manager of a research and development group for a company that probably made your phoropter and automatic tonometer.
Anyway, MS is not the end and I have become more aware than I have been my entire life. I’m a bit older than you (53) but I think it works the same no matter.
Your offer to share your knowledge and time is very generous. Information that comes from people who are experiencing MS is somehow much more meaningful and trustworthy.
Please don’t hesitate to post here. There are many people (like me) who watch all the posts incase they can offer help or can relate in some way.
I guess that’s enough for now
Hang in there,
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