Recently diagnosed with MS Need advice/support!

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Recently diagnosed with MS Need advice/support!

Postby nuala » Wed May 17, 2006 12:28 pm

Hi My Name is Nuala,
As i said in the subject i need advise on MS Does anyone find it hard to explain to family & friends how sad your feelin! :( are you happy sometimes then so so mad :x asking the question why me :?: I celebrated my 30th birthday & got engaged :D 3 days later 3/10/05 was told i had MS :oops: :x :? 8O :x :cry: I HAD ALL THESE EMOTIONS didnt know what to think or do .Iget upset when i get the bruising at my points the doctor says its because im so fair but that doesnt stop me feeling very down i have given up swimming because of the brusing as i dont want people to see them
thanks for listening
nuala
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Postby Arron » Wed May 17, 2006 1:03 pm

Hi Nuala, welcome to the site and I'm sorry to hear of your diagnosis. What you're experiencing in terms of emotions is of course extremely normal. You're among friends here, and we're all doggedly determined to find answers and hope to this illness.
Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
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i hear you nuala!

Postby jimmylegs » Wed May 17, 2006 6:41 pm

it's hard going through all that stuff isn't it! i went downhill out of nowhere really, in january, they tested me at the end of jan and handed me the diagnosis on feb 1. i had to cancel an exchange with school to australia, which had been scheduled to leave feb 2. instead i was laid up on the couch with a lumbar puncture migraine and couldn't even sit up to get answers from the internet. you want answers and nobody can explain it, your family support network can't help and is in their own kind of shock, and you just feel like there's no solid ground any more!

your bruising must be hard to deal with. i lost sensation, mainly, and it has come back a lot but not all the way and i'm about 16 weeks into this attack now. at the start, i kept thinking things like 'well at least i can still feel my hands' and then some fingers would go, and i'd say, well at least i can still feel my pointer and thumbs, and then they would go. and i'd say, well, i can't play guitar but i can sing! and then i would start having a hard time taking a deep enough breath! now i say, well at least i got okay with walking again, typing is getting back to normal, and i can still see!

one thing i have found is that by keeping active and pushing myself it has helped me make progress. don't sacrifice your health to other ppl's opinions of bruises! keep your body healthy and strong! kick this thing's ASS! go girl!!!
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u make me laugh

Postby nuala » Sun Jun 04, 2006 1:03 pm

hi jimmylegs
cool name by the way
thanks for your email it really has helped me made me try to cop on whats done is done no turning back so we need to be here for each other ,by your mail you seem to be having a bad time but you know we are here for you

nuala
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Postby REDHAIRANDTEMPER » Mon Jun 05, 2006 9:00 am

welcome to the site,
i know how you feel right now i have had so many emotions it is really hard to decribe them to everyone..i went and printed out stuff i found about ms and handed it out to my family and close friends..they all read it and then we sat down and talked aboutit..was easier to do after they had some information on it.....i have had no feeling on my right side now for almost a yr and i have my bad days and good days....however my firends and aspecially my kids get me thru this stuff...yes i could get mad about it or hide all my bruises i get but why...not my fault and i feel no need to change what i do or who i am becuase of a disease i have...i have big bruises on my leg and stuff and when people ask i tell them....when some people ask me how i am feeling i always smile and say still walking so am happy about that...most smile and say thats good and thats it...they dont ask anymore stuff...much better then questions all the time...but you write us whenever you need support thats what we are here for

chris
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;)

Postby jimmylegs » Mon Jun 05, 2006 1:01 pm

okay GROUP HUG!!!!!!! lol
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Postby REDHAIRANDTEMPER » Mon Jun 05, 2006 1:08 pm

YOU BET LETS HAVE A BIG OLD GROUP HUG HERE EVERYONE....
:wink:
CHRIS
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