aquabat182 wrote:I'm a 34 year old male currently serving in the United States Coast Guard. I was diagnosed with MS last week, and have since been trying to figure out what comes next. I've only had one flare up (which occured back in January) there was a significant amount of brain fog and fatigue at first so much in fact that It took me about a week to realize I had significant visual field issues and I was experiencing (to a lessor degree) loss of strength and coordination balance and some slurring of speech. Initially it was thoght that I might have been having a stroke but when the MRI was done they showed multiple MRI type lesions in my brain. Since then I have made pretty much a full recovery from all of the symptoms that were plauging me and I hope to stay that way. I'm due to start Copaxone in another week or 2 here (takes a little bit to get up to Alaska) and I'm hopeful that it will help prevent any more flare ups for now.
I just started to read the board today and I've seen a lot of refrences to proper diet and exercise, and I was just curious what most people try to start with? I already exercise on a fairly regular basis, (mostly cardio), and currently I have been on a low fat diet since January (as at first they thought this all could be a cardiac related condition). I've pretty much been sticking with the low fat diet because I've been feeling pretty good on it.
I'm most likely going to be discharged from the CG within the next couple years as I am about to start the medical board process (MS is a service disqualifier). I will be going back to school on my GI bill once I sort out what to study.
I'm hoping to learn a lot from these boards and the people on them as some of you seem to have done a lot of your own research into this disease. I would really welcome any advice people have to give as overall I'm feeling a little overwhelmed by all of the information I'm seeing.
Thanks a lot.
Welcome to ThisIsMS, Brian (aquabat182). There is a LOT to read here; we are a diverse group and each of us has our own unique ideas about MS. Mine revolve around gluten sensitivity and excess insulin. Undoubtedly, you will develop your unique ideas, too.
There is growing interest in gluten sensitivity and Dr. Amy Myers, M.D. even explained it on The Dr. Oz Show: http://www.doctoroz.com/episode/gluten- ... t-epidemic
@4:00 Dr. Amy Myers, M.D., speaks on the newly-recognized warning signs of gluten sensitivity: headaches, migraines, inflammation causing brain fog
, depression from nutrient deficiencies (zinc, iron, B vitamins, omega-3 fatty acids, vitamin D), joint pain & arthritis, and skin rashes.
@4:30 she says more than 18 million have been diagnosed with gluten sensitivity; suspects that 1 in 2 probably has gluten sensitivity
@5:00 mention of study in New England Journal of Medicine
several years ago that linked gluten sensitivity to 55 diseases – – I suspect that this includes MS.
Others have listed the following atypical symptoms (i.e., not the symptoms one would expect with a problem originating in the intestines):
dermatitis herpetiformischronic fatigue
neurologic symptoms (ataxia, neuropathies)
autoimmune disorders - list available at <http://www.aarda.org/>
Since the symptoms you mentioned included brain fog, fatigue, etc., I wonder if blood tests were conducted to rule out wheat/gluten sensitivity (It can develop at any time in a person's life.).
Some physicians might want to take only one or two blood tests, but the Celiac Disease Center at Columbia University recommends the following set to maximize the chance of getting accurate results:
Anti-gliadin antibodies (AGA) both IgA and IgG
Anti-endomysial antibodies (EMA) - IgA
Anti-tissue transglutaminase antibodies (tTG) - IgA
Total IgA level
I do not have a medical background, but it is my opinion that diet can be the most effective treatment and a good place to start (also, your exercise program is vital). I do not support the idea of a low-fat diet since good fats like coconut oil, egg yolks, olive oil, avocados, and even butter are necessary and used by the body in the brain, insulation around the nerves, for making hormones in the body, etc. I think a low-carb diet (avoiding all forms of sugar, artificial sweeteners, wheat products, trans fats, MSG, BPA) is more effective since it lowers the blood sugar level and, more importantly, the resulting insulin levels. Look through the Diet forum for suggestions on other plans.
You may find the forum here entitled "Veterans and MS" also helpful: veterans-and-ms-f51/
We are willing to share our experiences and our opinions, you only have to ask. We are glad you found us; and we thank you for your service in the United States Coast Guard.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"