GeneticTrainwreck wrote:Any input appreciated!
GeneticTrainwreck wrote:I did have my B12 levels checked recently and they were well in the "really good" range. I don't remember the actual number (I'd have to dig it out) but my doc said I might even be "over-supplementing." Not like that's damaging, but it's unnecessary. I was just taking 1 under the tongue B12 daily in addition to my multi-vitamin, but it pushed my B12 level from normal to excessive, and it's a water-soluble vitamin so any excess just gets washed out anyway.
lyndacarol wrote:One must trust that a "well-regarded neuroscience center" has thoroughly ruled out any possibility of a B12 deficiency. And with that off the table, it's on to exclude the other possible causes for your symptoms – all the best to you.
Youarethecure wrote:Well if it is MS or a disease you can at least take this as a good thing in my opinion.
If you have so much already going on but are doing well that is good. Your body and brain can compensate for the damage that has happened.
Hopefully its a more "mild" case of MS, if that is what it is.
Did your hearing return? Or with all of the other symptoms have they stopped or gotten better? Or have they lingered?
How old are you? male ? female?.... if you don't mind me asking. Do you or have you smoked cigarettes? Do you have anyone in your family with MS?
Lastly, is this neurologist an MS specialist?
Something serious and traumatic has happened to your brain for it to have white matter and all that. If and when they rule EVERYTHING else out, it can just about only be MS or a disease similar.
I would HIGHLY recommend going to another neurologist who is an MS specialist for a second opinion. Another diagnosis will be all you should feel you need.
I wish the best for you either way. No matter what it is, you can take the proper steps to being as healthy and happy as possible.
lyndacarol wrote:I apologize if my statements were interpreted as sarcastic. My quotation marks were used to repeat your words, to indicate that these were not my words. I am not acquainted with the term "scare quotes" and only meant to use quotation marks as simple punctuation. My use of italics was to emphasize that a thorough investigation rather than a cursory one is necessary to the reliability of testing.
Again, let me state that no sarcasm was intended. Sarcasm is not my style. I took your words, "Any input appreciated!," literally and was innocently offering ideas. I am sorry that my statement was misinterpreted.
Youarethecure wrote:if it is MS, it sounds like primary progressive MS in my opinion. It is a very slow onset, can be unnoticeable to some even.
Youarethecure wrote: Maybe some marijuana? That always helps me in many ways hehehe.
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