Have decided that this is the best MS forum in existence.

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Have decided that this is the best MS forum in existence.

Postby Minai » Sun Jun 18, 2006 8:38 pm

So, decided to stop lurking in the dark, here, and say Hello! :wink:

Diagnosed with MS, two years ago; I have been a most difficult patients for all of the neurologists that I've seen (four total) since I refuse to even try CRABS. Am so glad to be in good company with some on this forum.

Have been treating these autoimmune symptoms with diet, supplements, and various other methods. There again, I see that there are others doing the same, here, too.

And, I did agree to Solumedrol IVs that did tell my inflammation symptoms to settle down a bit, when they had gotten too far out-of-hand, recently.

In short, this is who I am and where I'm at.

Minai :D
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Postby sh8un » Sun Jun 18, 2006 8:53 pm

Hi Minai
I wish I was more like you. To say that you are what you are and you are where you are at and accept that is really a big deal to me. I mostly fight it and I am on avonex. Not that there is anything wrong with that. I am horrified of relapsing and live in the fear of that thought daily. I really believe in drugs but love your attitude. It's your body afterall and I am happy to see you and others on this site take control of how they wanted to be treated. As long as they have done thier research of course. Had to say the last part so I don't make anyone mad. It's true though anywa. :P
NN
Last edited by sh8un on Mon Jun 19, 2006 8:30 am, edited 1 time in total.
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Postby Arron » Mon Jun 19, 2006 3:25 am

Minai, Thank you for your wonderful compliment... and This is MS is what it is because of the amazing people that populate it, who are each working in their own way to eliminating MS from their lives forever. Thank you for saying hello, and I extend a warm welcome to you on behalf of the community.
Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
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Thanks for the kind words, sh8un...

Postby Minai » Mon Jun 19, 2006 9:56 pm

Actually, tho, I don't think I'll ever reach total acceptance of having MS.
Am fighting it too, just not with CRABS. And, oh yeah, there is always that relapse fear, along with various other. Research? Well, have been doing that since Day One and have been accused by frusturated doctors that I "think too much," because of it.

Am not completely anti-drug, just still looking for the right one(s). Anti-virals, antibiotics, and LDN are what I'm researching, now. Hope to know more about the direction I'll head, by the end of the week, when I get two dozen+ lab test results back.

Sure hope Avonex works well for you--that you never relapse, have site reactions, develop neutralizing antibodies, liver toxicity, etc.

I do think that for both of us, our fighting attitude will be the key to any of our successes :lol:

Minai
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My pleasure, Arron...

Postby Minai » Mon Jun 19, 2006 10:02 pm

Yes. Many, many intelligent people here. And, such a wealth of info in all of the modules, as well!

Thanks for the warm welcome, and thank you for everything! :lol:

Minai
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fight the fight!

Postby jimmylegs » Mon Jun 19, 2006 10:56 pm

hey minai, i'm fighting the diagnosis too. i know all they have are a bunch of checkmarks on a list, so i'm working towards taking check marks OFF that list. glad you have found this site so helpful and i hope you find the right drug soon. i had rebif shoved at me when i was diagnosed. i was worried about damage to my liver and ultimately decided not to take it even though my baseline liver function tests came back fine.

think too much, jeez. i hear ya. when i commented to my neuro in the early days of my attack, that i was having trouble understanding everything, he said something like well you'd have to go through years of medical school to understand it. so?? sign me up!! i can read! think you've got the only brain around here? jeez.
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Re: fight the fight!

Postby Minai » Tue Jun 20, 2006 7:24 pm

Hi jimmylegs,

Yes, it really "doesn't take a brain surgeon," to understand sometimes, does it :)

Best of luck to you, in your fight, too!

Minai
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