jimmylegs wrote:hey there, i know i read your musing earlier ED...
my family doctor, as soon as i exhibited symptoms that were not readily treated with b12 supplementation, sent me to a neuro who was far from casting around at a loss. he was a peripheral guy, not central, but he pretty much fast-tracked my testing and i had the tentative ms diagnosis within a week of my first acute symptoms, just in time to cancel an extended overseas trip. (which i'm on now, at last) and in about 6 weeks the ms clinic doc confirmed the ms conclusion.
i did not exactly fit the ON profile. my neuro expressed surprise at how good my eyes apparently are. so, they got it from all the mri findings, basically. do you think when people have trouble obtaining a diagnosis that in some cases their doc has not sent them for mri?
sh8un wrote:Hi EyeDoc,
I am ever glad to have you here? I had ON when I was diagnosed. I think. I mean my R eye hurt and things were getting very blurry and I had a hard time with reds. However, when the Dr. looked in my eye they said that "it seems ok." Not sure what that meant but at that pain they said it was not ON. Yet I know that you can still have ON that is not noticeable by just looking into the eye since it could be anywhere along the optic nerve. I had to go to three different neuros to actually get them to send me for an MRI. I also had evoked potentials of my eyes which my neuro said showed "some slowing."
The only thing is that when I wake up in the mornings, I still have eye pain. No changes in the vision though. IT tends to get better throughout the day but then every once in a while when I look to one corner it still hurts. I am on Avonex and have been since Apr. I am not sure what to think of that. Is it still going on? how long does it take for the pain away?
sh8un wrote:Hi Eyedoc
Thanx for responding in detail. There was never anything seen on my MRI that would affect the optic nerver and when the Dr.s would look into my eye they all pretty much said that "they look pretty much the same." WHen I had the EVP it showed "some slowing." My eye pain is a dull, bruise like pain which is worse when I look across a horizontal plane. It is usually worse in the morning which is scary. It also comes and goes. My vision is back to normal and is no longer affected by these episodes of eye pain. I just want to know if the pain is like any other MS symptom that comes and goes with stress etc. or if it only comes along when you have an attack? I hope that I answered everything and thanx again for your time.
EyeDoc wrote:I attribute this to the fact that MS is always affecting our nerves and therefore is likely always affecting our optic nerves to some degree, even without active inflammation. Even though we are not measured as having active ON, we still have the effcts of very low, baseline MS activity.
I personally feel that I get this feeling in times of stress or when I am very tired.
Thanx for replying EyeDoc. I think I would have to agree with you. My eye is just sore all the time. It's kind of annoying. I guess I can live with it though. Not like there is any other choice.
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