introducing myself

New members should feel free to introduce themselves here

introducing myself

Postby Bluebird99 » Sat Sep 19, 2015 1:34 pm

Hello fellow peeps-

I was diagnosed 6 months ago, at 59 with MS & 1 yr ago with Parkinson's.

It's taken me this long to adjust to my newfound anomalies. Having a double whammy of two Diseases with similiar symptoms its hard to know which IS which.the Meds I take for Parkinsons work well so most of my tremors and slowness are under control. I currently am not on any medicine for MS. I was on Copaxone for 12 weeks till I ran into some severe allergic reactions and or cellulitis.

It all started with slight tremors when texting, loss of smell, and mumbling and soft voice. Then,about a yr later, a bout of Optic Neuritis with scrotoma (blind spot) in one eye, on my last day of a hawaii vacation.however, Ten days prior when getting of plane a fellow passengers set of flippers hit my head from the overhead compartment,too.

The eye dr I saw said I had good timing as I already had a long awaited,7 months, appt with a neurologist- as he said it would've taken him longer to get me an appt.the Datscan proved PD- but at first I was dx w/ CIS- till 2nd round of MRI's found new lesions.

My symptoms of MS are mostly a weakness of left arm and numbness in both feet and extreme fatigue.
And a few headaches. My lumbar puncture was done a few months after my optic neuritis, and found No ogglical bands and mild Ana elevation. Due to those things and my age and fact I also have PD Sometimes I wonder if they're right, as I also had extreme bad inflammation in my hand joints and low grade fever etc and a bite on my mid thumb joint 6+ weeks before my cascade of symptomology. The joint pain is gone- I've been on potassium and omega 3's however, so don't know if it's that or Lymes disease as they didn't check for it in my lumbar puncture. Still investigating that,but we all know how that goes....

I live in knoxville Tennessee with wonderful husband.my children are grown and out of the house- have 2 grandchildren and 1 great grandchild .i love nature,reading, am artistic and crafty and collect and sell vintage clothes and other objects on Etsy for a hobby as well as crocheting. I studied dietetics/ nutrition at college but am not working right now. I am of the natural persuasion, and co- owned a healthfood store for 10 yrs.

I believe I have CCSVI as my first test of that area before I ever even heard of it showed abnormal tangled arteries and I have gotten a neck distention for years periodically - mostly it seems when my BP is elevated.

I hope to get to know everyone and make some friends here, as well as learn about things that will help us.
Bluebird99
Newbie
 
Posts: 5
Joined: Sat Sep 19, 2015 12:41 pm

Advertisement

Re: introducing myself

Postby lyndacarol » Sat Sep 19, 2015 3:15 pm

Bluebird99 wrote:I was diagnosed 6 months ago, at 59 with MS & 1 yr ago with Parkinson's.

...the Meds I take for Parkinsons work well so most of my tremors and slowness are under control. I currently am not on any medicine for MS. I was on Copaxone for 12 weeks till I ran into some severe allergic reactions and or cellulitis.

It all started with slight tremors when texting, loss of smell, and mumbling and soft voice. Then,about a yr later, a bout of Optic Neuritis with scrotoma (blind spot) in one eye, on my last day of a hawaii vacation.however, Ten days prior when getting of plane a fellow passengers set of flippers hit my head from the overhead compartment,too.

The eye dr I saw said I had good timing as I already had a long awaited,7 months, appt with a neurologist- as he said it would've taken him longer to get me an appt.the Datscan proved PD- but at first I was dx w/ CIS- till 2nd round of MRI's found new lesions.

My symptoms of MS are mostly a weakness of left arm and numbness in both feet and extreme fatigue.
And a few headaches. My lumbar puncture was done a few months after my optic neuritis, and found No ogglical bands and mild Ana elevation. Due to those things and my age and fact I also have PD Sometimes I wonder if they're right, as I also had extreme bad inflammation in my hand joints and low grade fever etc and a bite on my mid thumb joint 6+ weeks before my cascade of symptomology. The joint pain is gone- I've been on potassium and omega 3's however, so don't know if it's that or Lymes disease as they didn't check for it in my lumbar puncture. Still investigating that,but we all know how that goes....

I live in knoxville Tennessee with wonderful husband.my children are grown and out of the house- have 2 grandchildren and 1 great grandchild .i love nature,reading, am artistic and crafty and collect and sell vintage clothes and other objects on Etsy for a hobby as well as crocheting. I studied dietetics/ nutrition at college but am not working right now. I am of the natural persuasion, and co- owned a healthfood store for 10 yrs.

I believe I have CCSVI as my first test of that area before I ever even heard of it showed abnormal tangled arteries and I have gotten a neck distention for years periodically - mostly it seems when my BP is elevated.
Welcome to ThisIsMS, Bluebird99.

Since you were willing to share your experiences so openly, I sense that you are open to a few more questions.

With your background in dietetics/nutrition, I hope you will jump into our discussions of vitamins, minerals, and diets. After reading on the subject, I have a particular interest in vitamin B12 deficiency; I know its symptoms are the same as MS. In fact, other nutrient deficiencies can have similar symptoms. In the journey to your diagnosis, were you thoroughly screened for B12 deficiency (with the 4 initial tests: #1 serum B12 test or the newer, more reliable HoloTc test; #2 RBC folate test; #3 serum homocysteine test; and #4 a methylmalonic acid test)?

A recent concern of mine has been the residues of glyphosate in our food supply. (Glyphosate is the main ingredient in the herbicide, Roundup.) I know that glyphosate is a strong chelator and binds up minerals (including the cobalt mineral, which is the foundation of B12).

It is my understanding that glyphosate depletes the aromatic amino acid, tyrosine. Tyrosine is the precursor to dopamine; and I know that dopamine deficiency leads to Parkinson's disease.

I understand that it is not possible, unfortunately, to test for glyphosate levels in our bodies. Testing for mineral levels may be our only means of assessing a possible high glyphosate level.
User avatar
lyndacarol
Family Elder
 
Posts: 3383
Joined: Thu Dec 22, 2005 4:00 pm


Return to Introductions

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service