Have you requested a vitamin D test (the "25-hydroxy D" test)? If so, what were the actual test number results?trixie36 wrote:I am in a similar situation. I have been having neurological symptoms for man years but over past 3 they have gotten much worse. Then 2 days after my wedding last month I woke up and my eye sight was totally bonkers and my right eye hurt, then a week later the left side of my face went paralyzed and drooped (not Bells Palsy) for 22 hrs. Last month entailed 2 ER visits, 2 opthamologist appts, 1 Neuro-Opthamologist appt & 2 Neurologist appts. Tests that were done were MRI of my brain, and spine with contrast, & a visual field test. My MRI did show some abnormality in 2 areas of my brain white matter. The Neurologist is blaming many of the symptoms on "persisten silent migraine" but admitted it doesn't explain many of my symptoms and said he doesn't know what is wrong. He offered no treatments at all. This is unacceptable to me in that my quality of life at age 36 is awful, I have a hard time walking much or standing in place for more than a couple minutes, vision is now permanently altered, I am so fatigued everyday I can barely do anything and even small amounts of activity wipe me out. I was diagnosed with Fibromyalgia a few years ago but my symptoms go way way beyond what Fibro explains. So I sought out a second opinion from another large hospital in the same city but this one is better and after they reviewed my records they are sending me to see a specialist at their MS Clinic. So perhaps they are connecting dots the other Neurologist was unable to. You often hear stories of it taking years and multiple doctors for someone to finally get diagnosed with MS or one of the other dx that have the same symptoms. Or for 2 doctors to have conflicting opinions about whether someone had MS or not. I really hope the MS Clinic I see in a few weeks can help me. Have you seen a Neurologist yet? It is true that migraines can cause quite severe neurological symptoms and while uncommon they can cause episodes of symptoms that last weeks to months straight. I can see how some with MS are misdiagnosed with migraine first. Also many with MS also have migraines and one symptoms of MS can be a sudden change and/or worsening of migraine symptoms.
Users browsing this forum: No registered users