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I'm new here

Postby Harrishawk » Sun Nov 20, 2016 8:54 am

Hi I have just been told that I could have ms and am waiting for mri scan and lumbar punch in the next couple of weeks. I'm feeling very scared as I don't know alot about the condition. My symptoms only started 4 months ago with me being unable to do my usual work out at the gym and now I am unable to walk very far with out losing my balance and wobbling. I also am unable to empty my blade properly. I am 40 years old with 3 children, I just wanted to reach out as I don't know anyone with this and would like to speak to someone. Beth x
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Re: I'm new here

Postby mia72797 » Sun Nov 20, 2016 10:20 am

Well when I was diagnosed I ended up in the mri machine for about 45 mins. The Lumbar puncture was very painful. I ended up with a lp headache. I couldn't keep my head up without having a massive headache... I ended up in the ER and they did a blood patch. There isn't much to know...it changes your entire existence. They don't know where it comes from and they say there is no cure. And basically there are tons of different treatments that may or may not make your symptoms better. I was started out on Solumedrol which is a steroid, that is supposed to relieve the exacerbation... then they put me on Tysabri which was great until it threw my liver enzymes out of whack. Then now they wanna keep me on steroids until I get approved for Retuximab. There are good days and bad days... I have days where I wake up fine and other days that I never get out of the fatigue fog. Feels like Monday everyday.... its hard to go to sleep and hard to wake up. I feel depressed and many days I cry because I feel like I lose control over my body. I hate not feeling like myself. Its very overwhelming. Its difficult.

You have my prayers. I hope you find a great support system... it will make everything easier.

The thing with MS is that no one can see it so its hard for anyone to understand that you are actually sick. My suggestion is that you look for an MS Specialist in your area.

Hope this helps...
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Re: I'm new here

Postby lyndacarol » Sun Nov 20, 2016 12:08 pm

Harrishawk wrote:Hi I have just been told that I could have ms and am waiting for mri scan and lumbar punch in the next couple of weeks. I'm feeling very scared as I don't know alot about the condition. My symptoms only started 4 months ago with me being unable to do my usual work out at the gym and now I am unable to walk very far with out losing my balance and wobbling. I also am unable to empty my blade properly. I am 40 years old with 3 children, I just wanted to reach out as I don't know anyone with this and would like to speak to someone. Beth x
Welcome to ThisIsMS, Harrishawk.

As I understand it, you have been told that you could have MS, that the investigation of your symptoms is still underway, and that your doctor is still testing and ruling out other more likely possible causes for your symptoms.

If you have not had a vitamin D blood test called "25-Hydroxy D," ask your GP or family doctor to order one (and ask for your own copy of the test results).

Vitamin D deficiency can lead to all the same symptoms found with MS – according to GrassrootsHealth (http://www.grassrootshealth.net), serum vitamin D level should be at least 40-60 ng/mL.
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