Hello to everyone from Athens, Greece!
Im kaizen aka Thanos, 29 years old, and i have MS. I'm married to a wonderful woman who makes the sun shine brighter for me (no she is not reading this...). I hate my underpaid job, which requires me to commute for a full hour in the morning and another one in the afternoon, but on the other hand, im glad i at least have a job...
On October 2006 (happy birthday lessions) i found myself in an MRI tube wondering if my brain will look good for the photo shoot. Well, the neurologist didnt like the way it looked and he said i have multiple sclerosis. Honestly, i felt relieved that i finally found out what was happening to me. Can't say it wasnt a shock, cause it was. My wife was devastated, and in my opinion has flirted with depression since (I'm so glad she asked for help on her own and now sees a therapist, as i do).
Last April, the neuro i was seeing then, suggested that i should start Rebif, but i didnt (I chickened out honestly). As the summer passed, i found myself with permanent disability (mostly on my left leg) and convinced myself to start Rebif. Have taken five shots till now, and this past week and a half have been quite challenging cause of the flu like symptoms and the extreme fatigue (had this one before the drug, but i think it has worsened).
Tell you the truth, im determined not to let MS get in the way of me living a normal life, have kids and provide for them. I want to have vacations abroad, and explore the beauty of my own country. I want a better job, that will at least require me to put some of the skills I acquired in college in use... (btw, anyone has any suggestions on telecommuting jobs for marketers?). Ive already applied to Universities to get a second degree, and i really hope i receive a "fat" envelope in two weeks! Im determined to be strong and get the best out of everything.
But its tough... Dear God it's so hard sometimes... Makes me want to scream! I feel noone can understand the battle in my body and my mind, even if they want to... Besides, the "ghost" is invisible (ghost is the name i've given to the invisible guy who tackles and pushes me all the time and makes me walk like i do). They cant see or feel the "ghost". But im hoping to find people who will know what im talking about in here...
Im sorry for the length of this post, but I assure you, this was deeply therapeutic! Thank you so much if you've come this far, and I'll be delighted to read any comments!