Here in Ottawa, Canada

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Here in Ottawa, Canada

Postby DM » Sat Dec 01, 2007 7:25 pm

Hi. My name is Danny. I am 52 years old, and have been diagnosed with MS as of July, 2007. I have posted a few notes on the Drug Pipeline (teriflunomide) which I have been taking since early November.

I guess I am somewhat fortunate. I only had one episode, Nov/Dec 2006, with some slight numbing of my left hand fingertips and the left side of my mouth, and that is about it. It hung around for 3 weeeks, and then disappeared as fast as it came. No big deal. Not even an inconvenience.

Did all the tests, two MRIs, LP and everything else to allow the doctors to determine that I have MS. Except for that 3 week episode, I feel just fine.

So, I have decided to do the clinical test for terifunomide. Whether I am getting the placebo, or the drug, who knows. I think I am on the placebo because I do not feel anything different, however, the nurse says that is common. I guess my next MRI in April 08 will determine what is going on in my head.

So, I am a newbie with a few posts under my belt. I do not know how members use this board, whether they stroll around or stick to the topics that interest them. I just thought that this would be a good place to restart.
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Postby ssmme » Sat Dec 01, 2007 8:06 pm

Hi Danny,

I'm sorry for the reason you find yourself here. You'll find everyone here very helpful and most are knowledgeable about different treatments. If your not sure where to post a question or information, use the general discussion section. Most everyone looks there.

Welcome!

Marcia
Marcia
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Postby TwistedHelix » Sun Dec 02, 2007 7:01 am

Hello Danny, and welcome to the board. I'm sorry to hear about your diagnosis, but glad that things are going well at the moment: I hope the trial works out well for you.
I suppose everyone finds their own way to use the board. Personally, I have very limited energy reserves and very few drug trials are aimed at people in my situation, so I tend to stick to the General Discussion and Introductions boards for simplicity but, as with all things MS, you do whatever you need/have/want to!
Dom
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Postby DM » Sun Dec 02, 2007 8:18 am

Hi TH

I feel fortunate that I am not experiencing anything different. If the MRIs, which I have not seen, indicate MS, well, who am I to argue.

I don't require any medication. My wife thinks of it as preventitive medicine. I am taking this teriflunomide in the hopes that the results will prove positive for those who are stricken worse than I am. And one day, everyone can toss those damn needles in the garbage, and not suffer the sidefx as they are now. Popping pills are easier, and if I am not on the placebo, this is a cakewalk. Still too early to tell tho'. We will have to wait 'n see.

Marcia,

Thanks for the welcome. Doing this teriflunomide thing forces me to go for ultrasounds in the stomach area every 6 months. The technicians at the ultrasound clinic were surprised that I have MS because I do not exhibit the same as the other MS patients doing the same.

Anyhow, I guess this is for the common good.
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