hi all

New members should feel free to introduce themselves here

hi all

Postby msmything » Wed May 21, 2008 6:58 pm

New here..
Just got out of hospital today after 3 days IVSM.
This is getting serious now I guess. i was much better when I was still in Denial! :lol:
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Postby ssmme » Thu May 22, 2008 5:19 pm

Are you feeling better? I think the denial thing is something we all go through some for a longer period than others. Denial is no big deal until that big exacerbation comes along that really knocks you on your tail. Are you RR/PP/SP or has your doctor told you? When were you diagnosed?

You've come too a good site for info, support, or whatnot. Sorry you get to "join the club".

Marcia
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Postby msmything » Thu May 22, 2008 6:03 pm

I've been diagnosed with RR for about 3 years. Doc indicates that there's probably 25 years duration. Hindsight being 20/20 I can see the exacerbation history going way back. Always looking for the silver lining, the dx let me realize i wasn't lazy or crazy all those years.
However, it seems that since dx I haven't really experienced the remitting part of RR. Psychological? Or am I just more vigilant about how I feel?

It's an adventure eh?

I'm hoping the IVSM will produce results, I've got things I've got to do!!!
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Postby msmything » Thu May 22, 2008 6:40 pm

I keep forgetting, the symptom that put me over the edge was ptosis of the upper eyelids (drooping) I was at half mast, and having to use my forhead muscles to open my eyes enough to see.
I started out on Avonex for a year, betaseron 6 mos. Now I'm on Copaxone.
I'd changed neuros, and while describing my experiences he said 'clearly the interferons do not agree with you'
I agree.
We'll see how the copaxone works out, it's only been a month. Every day away from the betaseron I felt better and better. Happier and more hopeful...doesn't get better tahn that!!
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Postby jimmylegs » Thu May 29, 2008 11:59 am

heya ms, is that m smything, or ms my thing?

are you still having sleep troubles? the various reports i've been getting is that magnesium at bedtime really does the trick.

recently, you might have read that a couple people that started taking big doses of b12 in the morning had their sleep get messed up.

one has reported improvement since reducing the b12 dosage to 1000mcg, and not taking it in the morning.

i take 250mg (sometimes 500mg) magnesium with b-100 complex at bed time and it really works.

some people also have a light bedtime snack or drink containing tryptophan. looks like turkey's still a big winner, with a fraction of that level in milk, and banana coming in low on the totem pole:
http://en.wikipedia.org/wiki/Tryptophan
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Postby msmything » Thu May 29, 2008 3:26 pm

Mr. Legs?
I don't really know what the 'thing' is ...I kind of look fondly back on the days of the Addams family, or it could have a kinda country twang as in my thang..
Mostly it's a screen name I can remember.

I've been trying the mag thing for 2 nites, no difference, can't get past that 2am mark.

I have no titrouble whatsoever falling asleep, it's the staying.

My next plan involves being very regular about what time I get up. My problem is a couple of nites a week I work late (11:30 or so), I'm an ER tech. It's very physical, and I push my limits so I want to sleep in the next day.
So, my thinking is same bed time, same get up time every day. supplement with nap as needed.
It's a plan...
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Postby jimmylegs » Thu May 29, 2008 3:41 pm

sounds like a good plan.

how much mag have you been taking? you might need to up the dosage. if you do that and it still doesn't help, try adding a good potent b-complex to the bedtime regimen. with a glass of milk :) hopefully some or all of that will get you sleeping through the night.

do you take anything in particular in the morning? that could be part of the scenario also.

hope you can get it worked out soon! sounds like you need to be rested for that job!
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