Time for me to join in

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Time for me to join in

Postby Firefly » Thu May 29, 2008 5:56 pm

Hello.

I guess it's time for me to join in. I received my "official" diagnosis today.

I've spent a little while perusing the site and it looks like there is a lot of good information and there are many helpful people here. I think I will learn a lot and if nothing else, not feel so alone.
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Postby jimmylegs » Thu May 29, 2008 6:58 pm

welcome firefly - i saw you on the "newest user" line and thought cool user name :) it's true, there is lots to be learned and heck, sometimes it's just like a big old hug in here hehe!
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Postby Firefly » Fri May 30, 2008 3:59 pm

Thanks for the welcome, jimmylegs. My username is my homage to the short-lived but immensely popular sci-fi TV show of the same name -- I'm a fan.

I guess I'll relate a little more about me. I'm a 42 y/o woman, wife and mother of two. I'm a information architect/web designer and avid soccer fan.

My first symptom was in February. Facial numbness, followed by an MRI showing some small lesions. Had an LP which showed bands, and a VEP which was normal. Spinal MRIs were normal. However, my 3-month follow-up brain MRI showed a new small lesion. so I was given the "official" dx and am set to start meds soon.

My neuro recommends either Rebif or Betaseron. Doing the research now on them. My insurance covers the Rebif, that much I know at this point.
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Postby jimmylegs » Fri May 30, 2008 4:21 pm

hey i looked it up sounds kinda good :)

i'm 37 female, dx'd in early '06. no kids, and dumped the bf of almost 10 yrs last may. i'm going through post-secondary for the second time right now. i used to be in construction engineering technology but i'm switching to environmental studies/park management stuff. so i'll build things in parks maybe, at the end of the day hehe! like treetop walks or something fun :D

hey you have an impressive set of normal results. i had spots all over the brain, messy spine, bad VEP and the bad CSF too. good times. :S

i was lined up for rebif too but i changed my mind and skipped the drugs. at first they set me up with a govt funding application but then it turned out my insurance thru school would cover it, but then i never went through with it after all. pfizer just makes me mad and i couldn't deal with paying them so that i could suffer injections all the time. it's been okay so far, but maybe one day i'll have to change my mind.. hope not though!

anyway i'm one of the nutrition advocates on here if you ever have any questions on that, my door's always open :) now i'm going to go hunting for firefly episodes on youtube ;D
JL
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Postby Nenu » Sat May 31, 2008 5:14 am

Welcome! :)
Dx RRMS March 5, 2008.
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Postby daverestonvirginia » Sun Jun 01, 2008 11:07 am

I wonder why your doctor did not have you take a look at the information on Copaxone also? It's just when I was first dx deciding on the meds was also my first hard choice. My doctor had me look over info on the three meds and we decided on the copaxone because of the very low side effect rate. As just a regular person with MS, I still read any new information which comes out about it, so I do know copaxone is now the number one recommended med mostly because of the low side effects. By the way I also am on the Best Bet Diet (BBD) and take the BBD recommened supplements most importantly vit D and omega 3. Might want to get you vitamin d level checked, mine was real low when I was first dx. Lots to think about, just take it one day thing at a time.
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Postby GeoGuy » Mon Jun 02, 2008 6:01 pm

Welcome to the board Firefly. I remember a show on the SciFi Network by that name. So what if it was cancelled, it may be the next Star Trek.

I'm a Rebif guy myself and have had good results with minimal side effects.

You face a tough choice, deciding what med to take (or none). But you have to decide what is right for you. What ever you decide to try, if it works, great, if not you can always change to something else.

Whatever you decide, I hope it works for you, and no matter it turns out, you have us to lean on.

And oh ya, we will probably lean on you to.

Again, Welcome.

Jack
RRMS since 01/07.
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Postby Firefly » Tue Jun 03, 2008 5:28 am

But you have to decide what is right for you. What ever you decide to try, if it works, great, if not you can always change to something else.


Thanks for the nice welcoming post, Jack. I especially appreciate the reminder that this disease is different for everyone, and each must choose the treatment path that is best for them.
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