Thanks for the responses. I know you didn't ask, and I want you to know this story has nothing to do with anything other than my journey to connect the dots that led up to a diagnosis.
I've wriiten a lot here and hope you don't get turned off by my opinions...
After much research, I still look for the connections that me and my husband had that may have a basis in the different hypothesis regarding what contributes to the trigger for MS.
I have no other agenda in this post, other than that. I''ll post again, but it won't have to be focused on this at all. Here's the story.
Other than the marriage, the only other thing that my husband and I had in common was exposure to toxic substances. My exposure just came ten years later and in a different place.
The short story is that my husband was in the military and served during the Gulf War and in Somalia. This was before they labeled "Gulf War Syndrome". He started having symptoms shortly after he returned. Was diagnosed within 9 months. Me, I had always believed it was connected to his military service.
When I was diagnosed (10 yrs later), a coworker of mine was also diagnosed with MS within less than a month. No connection there other than work. I thought "What the heck?!!" Then I learned that the worksite we had just moved from had actually been remediated over this 10years of us being there (dug up/"cleaned up" after 200 yrs of industrial use). Leather Tanneries, Chemical Companies, Production of materials for the Dept. of Defense, etc...the list goes on and on. Worksite of about 60 pple didn't know this was what all the redevelopment along the river was about.
When I looked at the details of the health effects of these toxins (there were too many toxins to count), they matched my symptoms to the "t". Through my neuro doc, I got some tests done, and completed a hair sample test from a private company on my own. They found Lead, Arsenic, Antimony and Mercury. Though findings were not ALL at "out of range" levels, the belief I have is that over ten years, even low level exposure to multiple toxins could have been what triggered the MS, plus the body naturally tries to get rid of this stuff over time and once you've been removed from the exposure the numbers diminish. The tests I had done were only limited to what I knew of at that time, but there was much more that I would have been exposed to and not tested for. At the same time other people were being diagnosed with other things such as cancer, unexplained lesions, suedo tumors, and many other health problems. So it wasn't just about MS.
Today, my "x" is in a wheelchair and lives with his family in another state. I moved from where I was living and working, started Tysabri about 6 months ago and am doing very well with it. The only big issue I have right now is fatigue. Very common, I know. It's been 3 years.
What pains me is that every time I've gone in for the infusions, I'm surrounded by at least two or three people in military uniforms, also struggling with MS.
Again, thanks for responding to my post. I will visit this site regularly and look forward to sharing/finding information (other than just about my personal story) with other members on this site.