Thank you for welcoming me. Today I am less depressed than I usually am. I am quite alone on this MS thing. Alone, in terms of having a doctor I can trust. I don't trust my neurologist at all and I can't find a better one. I have tried 3 more but I don't like their thoughts about the disease. My neurologist was the one that had not directly told me my diagnosis, despite the fact that I was 21 at the time, meaning an adult in Greece, where I live. He is the same person that insists that my symptoms will eventually subside, but who trusts him? Subside? After a year? Nah! I have MS but I am not an idiot (yet). I have lived with doctors and have taken several of their university courses. What I think about them is: "The only bearable pain is the pain of someone else".
I can't accept the "autoimmune" dogma. Unless I see proof. I attend a post-grad course in bioinformatics, which enabled me to talk about MS with several professors, doctors, physiologists and biologists. What makes me hopeless is the fact that I have taken a course in pharmacology and (yikes!) in basic pharmaceutical financial planning. I really doubt that they will ever find a cure. Sincerely, pharmas make drugs, not cures. And, contrary to the common belief, the rate of progress in medical industry is declining, not improving. In 1989 about 25 new drugs were introduced. In 2005, I think, about 5-6. (data from a study contacted by the well respected PriceWaterhouse, can't find the link right now) In addition, I can't find a disease that has been cured in the last 30 years, so why now?
The greatest advance in medical industry has been the introduction of anibiotics, which saved billions of lives. Lives continued with high quality. I am a very strong supporter of euthanasia and I 'd like to do it when needed. I believe that what counts in life is the quality, not the quantity. I am mostly a neo-Darwinist and consider life as a wonderful expression of matter. Wonderful, in terms of its variety and its ability to generate thought and reason through complex neural networks. I don't want to make enemies here! I don't reject Gods and religions. I just consider them unrelated to MS and fully respect the beliefs of everyone.
In MS, I can't see the difference of using the CRABs, Ty and Novantrone. Huge side effects and injection inconvenience, that I doubt if the degradation of QoL makes them worth taking them, since altering the way of life can have similar effects. All meds are lesion-reducto-centric, without really considering the effects on the real QoL. As a user of interferon for many years, I have nothing good to remember about that.
In my opinion, unless MS is a circulatory disease, it won't be cured in the next 25 years. I could bet my head on that, however it's a bet I really want to lose!
Thank you for listening about myself. I only wanted to let you know me better and I would me more than happy to let me know you better, too.
Thank you all!
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."