I'm new to TIMS, but not to MS or other boards. I was dx'd 9 yrs ago with MS. Have tried ABCR and Novantrone, the latter being the only effective in slowing progression. Still, I had lots of other symptoms that couldn't be explained away by MS. My GP is both MD and naturopath with the added virtues of dilligence, ears for listening, and a great big heart. After 7 yrs and about a zillion tubes of blood, he discovered that I also have Sjogren's Syndrome (a connective tissue autoimmune disease). Since Sjogren's and MS brain lesions can be very similar, the ongoing dispute is whether I have both or just primary Sjogren's. For now my neuro is going with the both dx's . I take cellcept 1000 mg daily, plaquenil, loads of fish oil and vitamin D.
Since beginning cellcept 1.5 yrs ago, I feel healthier, stronger, and as pain free as I can remember. I just read the post about PML and cellcept and am bumming big time. I see my rheumatologist this Friday and I suppose we'll have to talk about other options.
By the way, my name is Laura. I'm 47 and live in Pa. Pleased to make your collective acquaintance