Its a pity I did not know about this a few years back (3 to 7).AndrewKFletcher wrote:One question I would like to ask the forum is about varicose veins and / or haemorrhoids being more prevalent in people with MS.
One minor incident is not a connection by any stretch. Otherwise my MS is related to the second and fourth fingers being exactly the same length on my right hand, but slightly different on my left.AndrewKFletcher wrote:Cure that is exactly what I would be looking for to make a VV connection with MS. Thank you so much for that.
I think you already have.AndrewKFletcher wrote:I would like if possible to ask your members if they would consider putting IBT to the test?
As for disrupting the flow, an individual thread does not "disrupt" other threads, even within the same forum. I am sure the administrators will create a forum if and when the need arises.AndrewKFletcher wrote:Would it be possible to add another Forum module so as not to disrupt the flow of the forum?
My "journal" is simply placed to possibly help others to decide if its worth a trial. I kept it separate to my main "journal", which has been running for a few years now. I will integrate the two if IBT becomes part of my long term strategy.AndrewKFletcher wrote:The idea is that each person has their own diary thread, and I can see you already have a Journal included in the site that could be used to great effect.
Without doing any of the numbers & tests, that sounds like it would be very dependent upon the density of the liquid, and how the "salt" alters that densityAndrewKFletcher wrote:Arrived at by observing how fluids circulate through a closed loop of tubing stretched along a bed.
The head of my bed is actually higher. Does this fact negatively effect circulation? as it does not bother me comfort wise.AndrewKFletcher wrote:...for optimum circulation and comfort. Higher and the bed becomes uncomfortable, lower and the circulation is less effective.
why not MRI's?AndrewKFletcher wrote: My biggest stumbling block with MS is that we cannot provide photographs to show changes, but we can provide a video diary to show improvements.
No, not at all. I re-read my post, and checked. I wrote of no such link between the two, you were at a slight disadvantage in that you did not know enough of my history, and that I commenced symptoms 12-15 years ago. The vein actually appeared 5 or so years after my first bout / symptom. Read my post carefully, my leg "collapsed" due to the pain, and function returned after an hour. If anything, I think it possibly disproves a link, as the vein has resolved itself, while my MS continued to develop.AndrewKFletcher wrote:Your mentioning a swollen vein at the time you experienced your first bout of MS is something a controlled study could not be used for.
I strongly disagree here, the placebo effect on a slow to resolve medical condition, only requires that the person be conscious of being treated. They may / think / will experience / note the effects while they are awake. Otherwise you would be saying that all placebo trials could be replaced by open label trials, but applying the treatment while the participant was asleep.AndrewKFletcher wrote:Double blind placebo is not required for a method that heals when a person is asleep. One has to be awake to be influenced.
Yes, most people will get yearly or such MRI scans as part of having the condition, to check on disease progress. You will just need to stay in contact with all the people that try this therapy, long term. From memory, you have had people with MS on an inclined bed for some time, if you contact them again, I would certainly expect a number of them to have had another MRI recently, that could be compared to a pre-therapy one?AndrewKFletcher wrote:MRI scan is a luxury I cannot afford. But if MRI scans are something a person uses fairly regularly they could prove very useful.
What might be helpful for folks interested in IBT, is for you to post your program on the Regimens section of the Forums. This way, people could see what your program is, and the rationale behind it. You can post any links you might have to outside pages on the internet, as long as they are free.
As Cure said, this is a very open and respectful website. As long as you are not selling a product (see Forum FAQ for the rules) you can explain your concept here to a larger audience of MS patients and caretakers. When a vascular specialist from a well-respected university suggested lifting the head of our bed, I did a search of the web to see if anyone else was prescribing this for cerebrospinal insufficiency, and found you.
We know there is a breech of the blood brain barrier with MS. I believe it is caused by more than a rogue immune system, and that is why I looked to the circulatory system- the endothelium, specifically. Schelling and Zamboni are finding a connection in the venous system, and you have found a connection, as well. Many others are finding the vascular link.
I'm sure it would be near impossible to do a trial on your theory, since there is nothing to "sell" to MS patients. It is as easy as putting some blocks under the bed. No money in that! And certainly no drugs to patent. But don't be disheartened. Thanks to the internet, many like- minded people are finding their way, and helping others. You may get your toes stepped on here, but don't let that stop you!
all the best,
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