new (again) to RRMS

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new (again) to RRMS

Postby Meegs » Sat Feb 28, 2009 6:20 pm

Hi,
Was diagnosed in 2004 with RRMS and was on a few therapies until 2006 when i stopped (felt fine)

Was feeling fine up until a few weeks ago when symptoms started to return. Neuro says i'm having a relapse... and its like being diagnosed all over again

:(

Now looking to start another therapy.. neuro suggests Tysabri is my best option.

Just wanted to say hi and get some information and opinions.

Thanks everyone,

Meegs
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Postby Loobie » Sun Mar 01, 2009 6:18 pm

Welcome Meegs,

I responded to your post in the Tysabri thread. Bad to have you back, but glad that you came here now that you see a need.
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haha.. thanks

Postby Meegs » Mon Mar 02, 2009 5:07 pm

hahaha.. bad to have me back indeed.

I'm glad this forum is here... its much appreciated.
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Postby jimmylegs » Mon Mar 02, 2009 6:22 pm

welcome meegs, lotsa canucks here, self included :)
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Re: new (again) to RRMS

Postby Bubba » Mon Mar 02, 2009 6:43 pm

Meegs wrote:Hi,
Was diagnosed in 2004 with RRMS and was on a few therapies until 2006 when i stopped (felt fine)



First of all Welcome!
Secondly... I know this may be a stupid question, but being a rookie I have to ask:
Do I have to take the meds the neuro wants me to take? If I am not having any problems? Or, is it suggested that I take them for preventative purposes? I feel 100% right now. I just dont understand...
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Postby Meegs » Mon Mar 02, 2009 7:07 pm

Hey Bubba... there are no stupid questions!

Your treatment is your decision.

I know how you feel... i felt 100% before the meds (original dx in 2004) took meds as a preventative measure (Copaxone then Rebif) until 2006 when the meds were making me feel lousy. I've felt 100 % from 2006 until last week.. with no meds... then MS decided to tap me on the shoulder and say 'Not so fast.....'

It's totally up to you. i'm moving forward with a drug treatment again because for me, right now.. i think its the best decision.

For you.. it may or may not be.

Don't let anyone tell you otherwise :)


jimmylegs... where abouts are you at? Was it -27 w/ windchill today for you? It was mighty cold here in TO :roll:
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Postby Bubba » Mon Mar 02, 2009 7:14 pm

Meegs wrote:Hey Bubba... there are no stupid questions!

Your treatment is your decision.

'

It's totally up to you. i'm moving forward with a drug treatment again because for me, right now.. i think its the best decision.

For you.. it may or may not be.

Don't let anyone tell you otherwise :)


jimmylegs... where abouts are you at? Was it -27 w/ windchill today for you? It was mighty cold here in TO :roll:



Ya see, I thought that once I was diagnosed, I had to take medicine.

BTW, It was FREEZING here today.... it only got into the low 60's LOL
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low 60's?

Postby Meegs » Mon Mar 02, 2009 7:20 pm

+15 (a.k.a. low 60's) is balmy! :P
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Postby jimmylegs » Mon Mar 02, 2009 7:46 pm

meegs i'm just west of TO, yup, crazy windchill. holy hannah, i'm glad my outside work was done on sunday, thought that was bad enough!!!
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