brain biopsy anyone?

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brain biopsy anyone?

Postby Mike56 » Fri May 15, 2009 3:42 pm

Gp says I have MS, but Neuro is still saying possible MS. I have a large lesion (2cm) in my brain (was thought to be a tumor, but biopsy proved it's a lesion) Anybody else here need to have surgery to rule out a tumor? I've read all kinds of forum's, no ones mentioned it. Symptoms began this Feb. 'Wooden' arms & feet, very clumsy, uncoordinated, etc. So far I've had 2MRI's, 3 CT's, 1 brain biopsy, multiple blood tests including RPR (the only acronim I remember) and a VEP (no results yet), and assorted other tests and examinations.
I still have all the symptoms that proded me into emergency in the first place, and more, including cognative issues, however they do change in severity from day to day.
I have a follow-up appointment with the Neursurgeon June 1st, and another MRI scheduled for August, followed by an app with my Neurologist.
A diagnosis, one way or the other, is all I need right now so I can figure out what to do next.
Just venting a bit.......
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Postby Lyon » Fri May 15, 2009 4:41 pm

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Postby Mike56 » Fri May 15, 2009 6:32 pm

B.C., Canada. Ask me anything! I'm an open book! Just desperratly looking for answers. Running out of sick time from work, but have applied for LTD with my insurance company. I have good medical coverage, although I paid for both MRI's myself to speed up the proccess, there can be quite a wait in BC for an MRI. I am 53 years old, which may have something to do with my Neuro's hesitation to diagnose MS??? I am immature for my age, but I guess that doesn't count.
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Postby Lyon » Fri May 15, 2009 6:47 pm

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Postby Mike56 » Fri May 15, 2009 7:04 pm

Thanks for the response Lyon. I sure hope your wife is doing OK! The doctors in emergency thought I was having a stroke too, but after a CT scan, they decided it was not a stroke, but was white brain matter disease......whatever that is. (I kinda know now what it is...) my wife and I have been through a lot in the last 3 months. When we thought it was a tumor, the surgeon said he could biopsy it, but because of its location, it would be inoperable. We really thought I was at the end of the road. I always felt it was harder on my wife than on me, and I had a hard time dealing with the upset she was going through.
Anyway...babelling on, sorry.
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Postby Lyon » Fri May 15, 2009 7:35 pm

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Postby Mike56 » Fri May 15, 2009 8:05 pm

Good point, Bob. I've been focussing so much on getting a diagnossis, whether it be MS or not, that I really didn't think any further down the line. I kind of pictured a trial and error period until they got my meds figured out, then back to work and hopefully not suffer too many set backs in the future. I never reall thought about knowing what COULD happen in the future.... Hhhhmmmmmm...
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Postby Lyon » Fri May 15, 2009 8:10 pm

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Postby Mike56 » Sun Aug 30, 2009 9:22 am

Update

Had a 6 month follow up MRI aug 21st. Got a copy of the report from my doctor, and have an appointment with my Neuro the end of Sept. My Doc says he's sure it's MS, we'll see what the Neuro says.

No lesions in the neck, no demyelination in the cervical region.

In the head, at least 9 supratentorial white matter lesions consistent with demyelination but do not meet Macdonald criteria for MS.

I had one large (2.1cm) lesion 6 months ago, now I have the one large one and a bunch of new ones..... something is going on in there.

Can anyone comment on the supratentorial lesions? The month wait to see my Neuro seems like forever.

Thanks,
Mike
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