Hey Globug - welcome, good to meet you, wish it was under better circumstances!
Lew is right (he often is, despite what he says about his active brain cells
) - I am so glad NHE responded to you - he might not have all the answers because no one does, but he is brilliant at helping you gather and make sense of whatever information there is available that might help you get a clearer picture.
If your disease is progressive, then maybe Rebif is not the drug for you - I don't know what is though, but I hope you find a medication or regimen that slows this nasty disease right down, I really do.
All the best - I know you are in a scary place, and the only advice I have is read as much as you can, and talk - here, with your doctor, wherever...