My name is Susie, and I live in Albuquerque. I am 55 years old.
I've be dealing with MS-like symptoms since last summer. I had two visual field cuts (lasting a few minutes), same eye, same pattern separated by two months. That's what first took me to my GP. Since I am a heart patient my GP and cardiologist presumed that I was throwing emboli, and I began anticoagulation therapy last December. This therapy was initiated despite the fact that MRI/MRA, transesophageal echo, and echocardiogram revealed no evidence of thrombi/emboli.
As early as last November I began experiencing episodes of utter fatigue that would last for 3-7 days and then disappear. Last February I began to notice muscle tightening in my right leg.
Quite suddenly in April my symptoms became much worse and have continued to worsen over the summer months. I had not had a visual field cut since last September, but I've had about one per month since April. Fatigue and blurred vision have become so problematic that I have given up teaching for the fall semester. I am able to walk, but my gait is clumsy, and I can only move slowly. My muscles often become so tight during walking or standing that I must sit down for a while to rest them. The muscle tightness in my legs and arms develops with exercise. The muscle tightness around my head and around my upper chest and around my hips/lower abdomen is constant. The tightness around my upper chest is very painful at times.
I am also having some cognitive issues--word finding, attention deficit, etc.
My ophthalmologist has been unable to detect any abnormalities inside my eyeball. I will see a neuroophthalmologist on Sep 28.
I have seen a general neurologist a couple of times this summer. He ordered MRIs of my brain and spinal cord. Those were normal.
I've also had a VEP study and a nerve conduction study/EMG. I have had an many, many blood tests. All of my tests have produced normal results.
I am very frustrated. I don't know how I could have so many symptoms and yet no diagnostic indicators.
One test I've not yet had is a spinal tap. I don't know if my neuro will order that test given that my other tests have been normal.
I'm wondering if any of you forum members have experienced anything similar to what I've just related.
Thanks for reading this.