This is my first time on a support site ever. I have had the label of MS for 30+ years and have had my share of ups and downs. Have been on Betaseron twice and Copaxone once. Both left me with severe Leukopenia (low white count) so I have not been a candidate for any of the DMDs
Have been secondary progressive for the past 4 years with minimal issues...I am very lucky and blessed.
In Sept. I had a bad fall on my chest which now I understand had to do with fatigue, vision/vertigo and balance issues that I avoided and convinced myself I was just doing too much and was tired.
Then the downward spiral began...Diplopia, vertigo, numbness fatigue UTI Breathing issues, left foot drop and too many things to list.
I took IV steroids for 3 days and went through a bit of craziness with that xoxo It did help resolve the double vision and for that I am grateful. Other symptoms seem to be appearing and the previous ones not resolving fully yet.
I was introduced to the Wheldon Protocol from a friend who is also on this site but am not having luck with finding a doctor in my area who will assist me. In reading past posts on this site I noticed someone from the Albany, NY area on the protocol and hope to make contact to see if she could recommend me to her doctor? I believe her name is Jen? If anyone has any info I would appreciate it as I am being pressured by my neuro and pcp to get on Gilenya even though I am not a candidate for many reasons! I am being told that my brain is deteriorating and if I do not start treatment soon I will be in a wheel chair! I don't buy it! And really dislike when they use Fear! With the brain fog and cognitive issues I am having I do not have the energy to deal confidently with my docs. Looking for someone new to be on my team. Thanks for any input or assistance anyone has. I do have all the info on the CAP and have been doing my research and the protocol makes a lot of sense to me with my history and recent Upper resp. infections and longstanding UTI's.
Thanks for listening xoox