I’m very excited to have found this site. My primary tactic for dealing with MS since I was diagnosed in 1993 (I'm 46 now) has been denial and so I didn’t often reach out to others or the internet for information.
This technique worked- for a while. I have tried to live a healthy life and have taken some supplements, I’ve tried copaxone, avonex and now I’ve been on Beta-Seron for over 3 years. Over the past 15 years my symptoms and flare-ups have gotten gradually worse and in spring of 2008 I got the episode that was never supposed to happen to me. With almost total numbness that went all the way up to my neck I also had trouble walking and with hand and arm co-ordination and control for the first time. By the time it was done progressing I had trouble breathing as I felt that there was a boa-constrictor squeezing my chest.
The 7 days of solumedrol did not help at all and the doctor basically just said there was nothing more he could do for me. Suddenly he remembered that people had some success with plasmphorisis and so I ended up in the hospital for 8 days to try this. It did help and I began to get better. It took me over 3 months before I could really get out of bed very easily and about a year to recover as much as I did.
I am now having another flare up that is getting kind of scary. It’s happening really fast and I'm having to start steroids again today.
They are horrible! But- Even the first dose seemed to help so I guess it's the right thing to do.
I need to go search for a thread that offers steroid trauma support.
Sorry to go on and on....I'm very glad to have found this support network.
all the best,