Hello all;
I'd like to introduce myself: Algis; 47yo Caucasian male originally from Belgium; living in Asia (now Taiwan) since 1988.
I was diagnosed with SPMS in 1998 and was able to keep my projects going until 2002; when I had a major relapse and had to retire completely from active life.
I am currently in an electric wheelchair; both my legs and right arm are disabled.
I currently am under LDN and arguably it helped me a lot. I did not get more relapse since starting it in early 2008. I am getting it from parallel channel since many drugs aren't available here in Taiwan.
My Neurologist keep me on Methotrexate and steroids.
I know this site since a while; but never bothered to give an opinion nor to register - Probably part laziness and part of shyness.
Also the 'Erika's story' and the prospect of something moving (CCSVI) decided me. I guess I will not disarm until I get an evaluation of possible venous flow insufficiency / anomaly.
Cheers to all; be well
Algis
New member
Welcome Algis!
I am so glad you decided to jump in! Erika, isn't she inspiring? She is truly amazing. I hope you visit the CCSVI portion of the site. I can't think of anyone else from your part of the world there, but I one of those really smart people over there will come up with some ideas. This is such a great place for support.
I'm glad you are here!
Beth
I am so glad you decided to jump in! Erika, isn't she inspiring? She is truly amazing. I hope you visit the CCSVI portion of the site. I can't think of anyone else from your part of the world there, but I one of those really smart people over there will come up with some ideas. This is such a great place for support.
I'm glad you are here!
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back. Placebo schmebo.