Hi Everyone from Newbie,

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Hi Everyone from Newbie,

Postby Chuck123 » Thu Nov 26, 2009 12:18 pm

I am the caregiver to my Dear wife who was D/X with RRMS two months ago. She is 2.5 on EDSS. Age 47, and healthy, exercises extensively. taking Copaxone.
Discovered this wonderful site last weekend.

Some have asked about CCSVI -MRv and MRA. We live in Niagara Penninsula. We are having CCSVI test done next Monday in Buffalo [cost 900.00 US]
We are working through Don/Bev Hamilton -Smith who are based in Canada They require a requisition from your GP, Neurologist, or Specialist. [Fax number is 905-615-7741, to set up app't---probably within week] For more information you can call Don or Bev at 905-615-4470.
UPDATE:
Monday Nov 30th, We have been to hospital today for MRV and MRA. Thanks to adivice we received last eve. It is important to specify MRV according to Dr.Zamboni protocol.
My Dear wife [patient] has to go back next week for further MRV. We in some respects, consider ourselves first patients, however clearly don't mind trying to do our bit for MS.


Sure hopes this helps a little bit.
Chuck 123
Last edited by Chuck123 on Tue Dec 01, 2009 7:05 am, edited 2 times in total.
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Postby CRHInv » Mon Nov 30, 2009 8:56 am

Welcome! It sounds like you are on your way! This has been a really wonderful place for me for answers and support. I hope you have the same experience.
Take care!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby Chuck123 » Mon Nov 30, 2009 7:44 pm

Thanks CRHINV,
Boy we are learning a lot too quickly. One thing for testing to follow Dr Zamboni's protocol you are looking for MRV plus if possible not just MRA.
Were at hospital today have to go back next week today's test not conclusive.
In any event. thanks ever so much for post and help.
Chuck123
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Location: Lake Erie

Welcome Chuck

Postby SandyK » Mon Nov 30, 2009 9:21 pm

Hi Chuck. There is a ton of great information here. I am learning more than I ever had in the 16 years since I was diagnosed. Good luck to your wife.
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Postby Chuck123 » Tue Dec 01, 2009 4:18 am

Thank you Sandy,
We all will keep trying.
Good luck.
Chuck
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Joined: Sat Nov 21, 2009 4:00 pm
Location: Lake Erie


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