I found this forum in my quest for info on CCSVI. You people seem to have cornered the market on this topic!
I was diagnosed almost 20 years ago in college. No symptoms for the first 10 years. Then, 2 kids later, the exacerbations started coming. Interferons didn't do it for me, and I have had more steroids pumped thru my veins than Barry Bonds.
Ty was my miracle until it stopped working about 2 years in. I have since lost all of the incredible skills I recovered while on it. I'm back to a cane for short walking, and a Segway for longer trips. At least that rocks!
I look forward to learning as much as possible from your members. Thanks for letting me in!