Gigi, I am so sorry you are going through this. I can totally relate. I was dx at 46. I did two rounds of steriods, but I never really felt like they helped, I really felt more like I had been poisoned, so I don't really know how I feel about steriods.
I also feel like I am losing my mind...very forgetful, use the wrong words
This was happening to me too. It started with forgetting things and word finding difficulties and then I started slurring my words. I hated this. I also had a 'seashell' feeling in my head. Like the static or fuzz you get when you yawn, but it was constant.
I am thinking i have had these sx for the past year and it has progressively gotten worse.
I had noticed that I was not thinking that great before things hit the fan with the physical symtoms, but I just thought it was the 'over 40' thing.
I think I would go ahead and get your dx. I don't know about how to find an ms specialist, sorry. Be sure to investigate the treatments part of thisisms. There is a lot of information there and I think it will help you with how you want to handle all of this.
I started out by doing the diet and exercise thing and copaxone. When I learned about CCSVI I kicked the exercise up. The things I had read before seemed to stress not stressing your body, so I had been going that way. CCSVI seemed to say that your blood wasn't moving, so I decided to move mine. I don't think this is a good course for everyone
and I was actually pretty scared to do this, but it seemed to work for me. I am very lucky that my MS has not affected my legs. I used to run, but hadn't in quite awhile. The day I ran just one block, about a block later I had the wierdest sensation. My seashell head 'broke'. It was actually pretty alarming, like I needed to hold on to something, but all of the sudden the seashell feeling was gone. The thinking and other issues were still a problem, but it was nice to loose the fuzzy sound in my head. Anyway, I bumped the running up to a mile a day and I noticed the word slurring improved quite a bit. The word finding and forgettfulness seemed to remain. I know this isn't something everyone can do and it probably isn't something that everyone should do. This is just my experience.
Now, I am waiting for my two month follow up with Dr. Dake. I have had some amazing improvements. My favorite part is that I can think, find words and I don't slur anymore. There is something to this.
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back. Placebo schmebo.