Diagnosed 2.5 years ago, determined to cure myself

New members should feel free to introduce themselves here

Diagnosed 2.5 years ago, determined to cure myself

Postby ndwannabe » Sun Jan 03, 2010 2:29 am

Hello everybody.

Introducing myself after reading some 10 pages out of 56 page discussion on CCSVI (my latest research of interest) - this board is full of very knowledgeable people!

I am 39yo mom of two, engineer and a part time student.

Briefly about my MS - Dawson fingers on the brain, big sclera in the tail bone region. Only had one initial round of MRI's, about five of them.

Since then tried many alternative therapies (I refused conventional drugs), right now settled on Best Bet diet, including recommended supplements, B3 flush twice a day, apitherapy and yoga.

Since I did not have a follow up MRI since initial diagnosis I was never labeled to have RRMS ot PPMS.

All I know, I was accumulating new symptoms with high speed for several months until I started implementing above strategies.

Now, I had no new symptoms for 1.5 years, my fatigue is greatly reduced, my speech is back to normal, my shoulder spasms are gone.

I still limp (mostly left leg), feel inflammation in my "transmission" and have leg spasms, especially in the morning.

I do not have "attacks", nor do I have remissions.

Looking forward to learn as much as I can from all of you!
DXed 09/07
<strong><strong>MSIS-29 = 88</strong></strong>
User avatar
ndwannabe
Family Elder
 
Posts: 290
Joined: Sat Jan 02, 2010 4:00 pm
Location: SF Bay Area, CA

Postby CRHInv » Sun Jan 03, 2010 8:03 am

Glad you found us! Sounds like you are doing really well and have things under control.
Again, welcome!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
User avatar
CRHInv
Family Elder
 
Posts: 402
Joined: Sun Aug 30, 2009 3:00 pm
Location: Chandler, AZ

Postby lyndacarol » Sun Jan 03, 2010 11:55 am

ndwannabe--The mention of the therapies you have chosen to use:

Since then tried many alternative therapies (I refused conventional drugs), right now settled on Best Bet diet, including recommended supplements, B3 flush twice a day, apitherapy and yoga.

was very timely since our local newspaper had a short item (a question in the doctor's column) on apitherapy and MS. I know that topic has been discussed here in the past. Try doing a search to find previous postings.

The newspaper article stated, "Your daughter is cutting edge on the information circuit. Georgetown University in Washington, DC has begun a preliminary one-year study funded by the Multiple Sclerosis Association to research apitherapy as a potential treatment. I don't know whether any clinical trials are underway, but you might want to follow that road to determine whether you meet their guidelines."
User avatar
lyndacarol
Family Elder
 
Posts: 2247
Joined: Thu Dec 22, 2005 4:00 pm

Postby ndwannabe » Sun Jan 03, 2010 1:23 pm

lyndacarol, thanks for the heads up on apitherapy trials!

CRHInv, I see that you had CCSVI testing and procedure done, I am now reading the posts and articles about this until 3am 8O

I don't know WHAT to think yet. Excited and scared at the same time. Will look up your posts in the "monitoring" topic in the CCSVI forum.

Palo Alto where Stanford is is 30 minute drive from me.

I am dying to have (at least) the testing done!
User avatar
ndwannabe
Family Elder
 
Posts: 290
Joined: Sat Jan 02, 2010 4:00 pm
Location: SF Bay Area, CA

Postby SandyK » Mon Jan 04, 2010 11:41 am

Welcome ndwannabe. This is the first place I go for information. I don't like all the fluff groups that tell me to smile big and be cheery. This place gives me answers and also kicks me around when I need it. I am also on doing the BBD and supplements without the CRABs. Here's to us!
User avatar
SandyK
Family Elder
 
Posts: 221
Joined: Wed Oct 14, 2009 3:00 pm
Location: WA


Return to Introductions

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service