Who's on LDN?

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

Who's on LDN?

Postby Armand » Thu Nov 20, 2003 4:07 pm

Check in here...

Copy and paste these questions into your reply to help everyone out!

Are you on LDN?
How long?
How many mg's?
When do you take it?

What kind of MS do you have (rrms, spms, ppms)?

Positive changes since/while taking LDN?

Negative changes since/while taking LDN?

Any relapses while on LDN?

The million dollar question: Will you continue to take it?
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Armand
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Postby Maggie » Wed Dec 10, 2003 1:17 pm

Are you on LDN? Yes
How long? 2 years, 4 months
How many mg's? 3 mg's
When do you take it? Never before 9 pm, but usually by 3 am

What kind of MS do you have (rrms, spms, ppms)? SPMS

Positive changes since/while taking LDN? Nothing symptomactically

Negative changes since/while taking LDN? NONE

Any relapses while on LDN? NO !! I have remained stable & my MS has not progressed, which is LDN's main function.

The million dollar question: Will you continue to take it? ABSOLUTELY !!
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Postby Sally » Thu Dec 11, 2003 3:33 pm

Are you on LDN? Yes
How long? 8 months
How many mg's? 3
When do you take it? 10:30 PM

What kind of MS do you have (rrms, spms, ppms)? spms

Positive changes since/while taking LDN? Better balance, clearer mind, more energy and no flares.

Negative changes since/while taking LDN? None

Any relapses while on LDN? Nope

The million dollar question: Will you continue to take it? ONLY UNTIL THEY COME UP WITH A CURE :wink:
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Re: Who's on LDN?

Postby LarryLDN » Fri Dec 12, 2003 1:21 am

Are you on LDN?
How long? 04/17/03 just took dose #241
How many mg's? 3.0

When do you take it? 0000-0200 ET

What kind of MS do you have (rrms, spms, ppms)? RR

Positive changes since/while taking LDN? Day 9, RLS gone; Day 11, bladder issues changed greatly freeing me to have the most awesome summer of my life. and more... my day 220 report update is on my ezboard http://pub218.ezboard.com/bldnlowdosenaltrexone

Negative changes since/while taking LDN? Banned from 5 MS sites, and counting. 2 groups didn't like my Progress, while they were ProgressIng. 2 others are paid by other corporations.

Any relapses while on LDN? Had some incidents since 9/1, but each was cut down rather quickly due to LDN and my chiropractors. The first 2 I caused to test LDN, the other 2 were also good tests.

The million dollar question: Will you continue to take it? May try 4.5 to see if it's any better.
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LDN survey

Postby JoyceF » Fri Dec 12, 2003 12:42 pm

Are you on LDN? Yes
How long? since May 2002 so about 18 months
How many mg's? started with 3 mg, after 6 mos I upped to 4.5mg
When do you take it? just before I go to bed most times between 10:30 and 11:30 pm

What kind of MS do you have (rrms, spms, ppms)? rrms

Positive changes since/while taking LDN? no noticable changes

Negative changes since/while taking LDN? NONE !!

Any relapses while on LDN? thought I was having one until I switched compounders and upped the dose from 3 to 4.5mg

The million dollar question: Will you continue to take it? ABSOLUTELY
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Postby Hennry » Fri Dec 12, 2003 1:09 pm

Are you on LDN? Yes
How long? 5 months
How many mg's? 4.5mg
When do you take it? 930pm

What kind of MS do you have (rrms, spms, ppms)? rrms

Positive changes since/while taking LDN? increased stamina, way better mood

Negative changes since/while taking LDN? did not make me look better :twisted:

Any relapses while on LDN? no

The million dollar question: Will you continue to take it? yes
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Postby sparkins » Sat Dec 13, 2003 11:18 am

Are you on LDN? Yes
How long? 4 months
How many mg's? 4.5mg
When do you take it? 930pm

What kind of MS do you have (rrms, spms, ppms)? rrms

Positive changes since/while taking LDN? increased stability, less fatigue

Negative changes since/while taking LDN? none

Any relapses while on LDN? no

The million dollar question: Will you continue to take it? DEFINATELLY :)
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Postby Sally » Tue Dec 16, 2003 5:07 pm

I am forwarding this from Sandra Lee from spotlight ldn forum:



Are you on LDN? YES
How long? 2 months
How many mg's? 3.5 mg
When do you take it? between 9 & 11 pm

What kind of MS do you have? RRMS

Positive changes since/while taking LDN?
MUCH improved speech and brain clarity,
better balance, MUCH improved energy level,
less muscle contactions.

Negative changes since/while taking LDN? NONE

Any relapses while on LDN? NONE

The million dollar question: Will you continue to take it? ABSOLUTELY!!!
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Postby Guest » Tue Dec 16, 2003 10:01 pm

FORWARDING - ALLISON KENNEDY Post to spotlight ldn


Are you on LDN? YES
How long? Since mid-August '03
How many mg's? 4.5 mg
When do you take it? between 9 & 10 pm

What kind of MS do you have? Hard to say... not RRMS; my neuro
calls it "chronic MS" - maybe it is SPMS. I don't really have
exacerbations, just a slow downhill ride.

Positive changes since/while taking LDN? I think clearer...
though I also started "Dr. Venessa's" Neuro supplements (OTC) at
about the same time. Improved energy level.

Negative changes since/while taking LDN? No

Any relapses while on LDN? No - but I don't have them anyway.

The million dollar question: Will you continue to take it?

I think so - I was on Copax for 2.5 years, and felt like it
wasn't doing a thing. The interferons worry me a bit - my liver is
borderline anyway; it doesn't need "help". Besides - this way, I
don't stick myself with a needle anymore!
Guest
 

L.D.N. use

Postby Altaboy » Wed Dec 17, 2003 2:58 pm

Are you on LDN? YES
How long? 2 months
How many mg's? 4.5 mg
When do you take it? 10:15pm

What kind of MS do you have? PPMS

Positive changes since/while taking LDN?
improved speech and brain clarity, better balance, MUCH improved bladder control,
less muscle contactions.

Negative changes since/while taking LDN? NONE

Any relapses while on LDN? NO Don't Have with PPMS anyway

The million dollar question: Will you continue to take it? ABSOLUTELY!!!
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ldn

Postby katrina » Wed Dec 17, 2003 3:08 pm

Are you on LDN? yup
How long? going on 20 months
How many mg's? 4.5
When do you take it? between 9pm and 1am

What kind of MS do you have (rrms, spms, ppms)? rrms

Positive changes since/while taking LDN? no progression in 20 months, i smile much more, which led to me planning for my future....crazy. basically, everything has changed for the better...however, still can't dance too well OR wear heels.

Negative changes since/while taking LDN? just trying to explain to other folks the what, how, and why of ldn. no one ever believes me. so i guess the negative points of ldn is frustration. that's about it though...and a bit of stiffness, but that's gone now.

Any relapses while on LDN? nope

The million dollar question: Will you continue to take it? forever and ever....i'll even take it while i breastfeed (i think).....
katrina
 

Postby Nancy in IL » Thu Dec 18, 2003 1:52 pm

Are you on LDN? Yes


How long? 25 months


How many mg's? 4.5 mg


When do you take it? between 11:00 and 11:30 (my bedtime)


What kind of MS do you have? RRMS


Positive changes since/while taking LDN? Improved balance, much
less fatigue, less numbness, feel stonger, less brain fog


Negative changes since/while taking LDN? none


Any relapses while on LDN?
Maybe. After 4 months on LDN which was
compounded at my local pharmacy (I was their only LDN user), I had
some new symptoms. I decided to change pharmacies. I now use The
Compounder in Aurora IL. The symptoms went away within 2 weeks of
changing compounders, and I have had no problems in the last 21
months.


The million dollar question: Will you continue to take it? Absolutely!
Nancy in IL
 

Postby Tom » Fri Dec 19, 2003 7:21 am

Are you on LDN? Yes

How long? Since 7/03

How many mg's? 4.5 mg.

When do you take it? About 10:PM

What kind of MS do you have (rrms, spms, ppms)?
SPMS or PPMS, not really sure.

Positive changes since/while taking LDN?
The first night there was a noticeable increase in feeling and sensations in my feet and ankles. That 1st night there was also a significant lessening of urinary urgency and frequency. The following few days there was a noticable increase in leg strength and balance. Since that time, no further inprovements but those mentioned have remained constant.

Negative changes since/while taking LDN?
I have had increased spasms in my lower back and legs this week ( Dec. 18th ) for the first time since starting LDN.




Any relapses while on LDN?
This week ........maybe??

The million dollar question: Will you continue to take it? Yes!!
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Postby Jay » Fri Dec 19, 2003 1:35 pm

Are you on LDN? Yep
How long? Since Oct 2002
How many mg's? 4.5mg
When do you take it? Bedtime (around 10.30pm)

What kind of MS do you have (rrms, spms, ppms)? Who knows! was RRMS, this (my 2nd) attack has lasted 3 years - SP now I guess

Positive changes since/while taking LDN? within 1st week tingling was drastically reduced, fatigue, stamina, bladder all improved slightly and never gotten worse again.

Negative changes since/while taking LDN? Had slight stiffness/aching in lower back for few coupla months, but nothing since.

Any relapses while on LDN? Well no, but seem to be in a constant relapse anway!

The million dollar question: Will you continue to take it? OH YEAH!
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Postby Marcie » Tue Dec 23, 2003 4:43 am

Are you on LDN? Yes.
How long? 2 months.
How many mg's? 3mg.
When do you take it? Betwen 10:00 - 11:00 PM.

What kind of MS do you have (rrms, spms, ppms)? PPMS

Positive changes since/while taking LDN? Much better bladder control/less spasms.

Negative changes since/while taking LDN? I wake up too early in the A.M. and need to go to bed earlier, but I can live with that.

Any relapses while on LDN? Not that I can tell.

The million dollar question: Will you continue to take it? Absolutely.
Marcie
 

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