This Is MS Multiple Sclerosis Community: Knowledge & Support

could someone briefly explain LDN to me? There is so much out there and my internet connect SUCKS and I get disconnected....I would love it if someone could answer these questions for me...please and thanks!

where did it come from?
does the MS Society recognize it?
when should someone consider taking it?
what makes it different than the other options?

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< March 20, 2004 = I want my life back *sigh*
> March 20, 2004 = ...day one on alertec = getting my life back? *grin*

Hi again, I can't answer any of your questions, but if you go to the LDN info in the encylcopedia on this site you'll find the best description I've seen.

To the best of my knowledge it's not recognized by the MS Society (at least not in US).

Have a great week end!

Sharon

Goodness you are helpful Shayk! Thank you yet again!

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< March 20, 2004 = I want my life back *sigh*
> March 20, 2004 = ...day one on alertec = getting my life back? *grin*

Hi Virtually Fine. I've been on LDN for about 22 months now and have done a lot of reading and listening so hopefully I can answer your questions to the best of my ability.
1. Where did it come from? Naltrexone has been around since the 70's. FDA approved at 50 mg dose for heroin and alcohol addicts.

2. Does the MS Society recognize it? Nope. Dr. Bihari in New York came up with the theory that taking a very low dose of it would block endorphin production for just long enough for the body to kind of go into overdrive and think that it needs to produce a whole lot of them and does produce about 200% to 300% more of them. This in turn regulates the immune system back to one that no longer attacks itself.

3. When should someone consider taking it? IMHO asap...it supposedly helps with many diseases that have an auto-immune component.

4. What makes it different than the other options? Oh boy...I'm not a doctor so I have no clue how the other ones work or don't work more then likely. I have heard it said that the others work for about 30% of the people 30% of the time...I personally don't like those odds. I'm not too terribly fond of shooting that stuff into my system. LDN is very harmless at such a low dose. There are reports that it could be harmful to the liver but that is at something like 300 mg doses.

I sure hope this helps.....let me know if you have any other questions. I really do hope that one day this will be the first line of defense for all auto-immune diseases. Ok...lots of people will lose a lot of pharmaceutical $$$ but hey not my problem.

As Shayk noted, here is the link for our explanation of how LDN might work.

http://www.thisisms.com/encyclopedia-1.html

Remember, it's all a theory at this point. Additionally, if you read that article about MS possibly not being an auto-immune disease, it might point to why LDN, which affects endorphins (something much more generalized than the immune system), might work.

again, I say thank you

i see my neuro tomorrow and will be discussing...

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< March 20, 2004 = I want my life back *sigh*
> March 20, 2004 = ...day one on alertec = getting my life back? *grin*

Joyce,

Thanks for the explanation on how LDN works. I've read the sites, etc. but it never was perfectly clear until I read your answer here!

I'm seeing my alternative doctor on April 1 and hoping to get a prescription to start asap. From what I can see, it can't hurt even it doesn't help - which would be surprising from all the positive results reported everywhere!

Hugs,

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Brenda H.
Only one thing has to change for us to know happiness in our lives: where we focus our attention. -Greg Anderson

The LDN websight is http://www.lowdosenaltrexone.org/ldn_and_ms.htm
and it has more iformation there?

I have been using LDN for about three months and it has helped me, But it is not recommended by the national MS society.

but who cares if it works right

regards

Hi there I have been taking 3mg capsules LDN for 6 weeks now and feel much better already. The pain in my legs, feet, ankles that I had been suffering from for years has now completely gone, thanks to LDN.

I obtained my LDN from a doctor in the US by doing a telephone consultation. Very professionally done.

I have no side effects and feel almost normal again for the first time in years! WONDERFUL!!!!

I will take it forever if I have to if this is the result, I don't care if the MSS approve it or not. It's my body after all.

I just wanted to share this information with other MS'ers so that they may benefit too. There is a big campaign going on at the moment on
www.msrc.co.uk to help get LDN prescribed and trialled in the UK.
My GP gave me a script this morning at long last. He's not such a bad guy after all, LOL.

Best wishes to you all
Andy

Andy, it's great to see you getting along so well. I remember the early days where you were just learning about LDN and now 6 weeks later you're a great example of what this drug seems to be able to do. Please continue to keep us posted, this information is incredibly valuable to all of our members.