I have progressive MS, only had one relapse in 2002 before being diagnosed.
I started 3mg LDN in January 2008, and for the first 6 weeks my mobility quickly improved slightly - better balance and legfs strengh
I was so happy
then i started getting worse very quickly, much quicker than i usually progressed,
My mobility became Alot worse quickly
I went from walking 100 metres comfortably, good balance, no foot drop, to suddenly left leg dragging, weakened legs, poorer balance,
I tried increasing my dose to 3.7, 4.5 and 6, but my deterioration stop or improve
I found when i took 2mg the progressions stopped.
and for the last 2.5 years have been taking 2mg LDN every night around midnight - this time seems to work best for me
- i haven't progressed since starting 2mg LDN, and if i have its so slight that i haven't noticed it.
So in August i got tested and treated for CDCSVI - Balloon angio,
my mobility has improved slightly
I was just curious if anyone knew why i got so much worse so quickly by just taking 3mg -4.5mg of LDN?
could the CCSVI I have in my IJVs be the reason?
After looking at my Venogram images Dr Sclafani said i had:
1 - May Thurners syndrome (narrowed left illiac vein)
2 - Stenosis of both Jugular veins
3 - poorly developed lumbar veins