LDN/COPAXONE COMBINATION

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

LDN/COPAXONE COMBINATION

Postby Stabilo » Thu Dec 02, 2010 9:01 pm

Hi all,

I have been on Copaxone since October of this year, and have noticed a huge increase in my fatigue.....not sure how common this is, but it is very tough trying to keep up with my 2 little ones. I have been doing a lot of reading into LDN and am wondering how many of you take it along with Copaxone? From what I can tell LDN has helped many with fatigue and brain fog. Anyone noted any decrease in dizziness from LDN?

I only ask how many take this combination as I have not been on Copaxone long enough to see the effects it will have on my MS and am hesitant to give it up after such a short period, but NEED something to manage my fatigue and brain fog!!!! Any information would be appreciated!
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Postby questor » Fri Dec 03, 2010 8:59 am

I have been using Copaxone for 12 years now. I've never noticed any benefit symptom-wise from using it, but I tolerate it very well and so continue to use it as I think it's the smart thing to do.

I took 4.5mg LDN nightly for about 2 years, but stopped taking it before surgery at Stanford Sept 2009 (it can't be used in combination with narcotics), and I never restarted it (I haven't wanted to work through the increase in spasticity associated with using it).

The best thing I've found for brain-fog and fatigue is physical exercise, in whatever form.

But, I wanted to let you know I used Copaxone and LDN together without any problem.

Good luck.

--Tracy
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Postby Stabilo » Mon Dec 06, 2010 9:55 am

Tracy,

thanks for the information :) Did you have any other problems/side effects aside from the increased spasticity?
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Postby questor » Mon Dec 06, 2010 10:33 am

Yes, about a month after starting LDN I developed a yeast infection that took several months to clear up (and I'm male). I don't eat dairy products, and up until that time didn't take acidophilus supplements, so my intestinal flora was pretty weak probably. Getting the yeast infection to clear up involved working with a doctor to get hold of a good probiotic supplement (which I still take 3 times daily). I've since read that candida or yeast infections aren't uncommon when taking LDN, so it is wise to take an acidophilus supplement as well.

--Tracy
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone
Former Ampyra User
Regular Botox Bladder Injections
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Postby Stabilo » Mon Dec 06, 2010 12:15 pm

even better to know! Thank you very much.......and might I ask how you've been doing since having CCSVI treatment?? It is something I am very curious about and am seriously considering, but am at a loss as far as a decision to wait it out until it is offered in Canada or travel abroad.........
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Postby questor » Mon Dec 06, 2010 1:08 pm

Sure, I've posted conclusions from my one-year update here:

One Year CCSVI Update

In short, I've benefited from symptomatic improvement in certain areas, but not others, and still experience slow secondary progression.

Good luck with the LDN...

--Tracy
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone
Former Ampyra User
Regular Botox Bladder Injections
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questor
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Posts: 280
Joined: Mon May 22, 2006 2:00 pm
Location: Northern Calif Monterey Bay Area

fatigue and MS

Postby ZENDEL » Sat Jan 22, 2011 11:59 am

I have MS from 13 years. When it comes with fatigue - I'm taking Modafinil and everything is OK after 1-2 days. Typical dose is 250mg/day in the morning /don't take it after 12.00 - you can't sleep because of this.../. It is also very good if you are taking Copaxone and LDN togeather with Modafinil - no any problems.
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