This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 11:35 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 3 posts ] 
Author Message
PostPosted: Tue Jul 12, 2011 12:30 pm 
Offline
Family Elder
User avatar

Joined: Thu Apr 20, 2006 3:00 pm
Posts: 118
Location: O Saviñao, Lugo, Galicia.
Hi,
I've been on LDN for 2 1/2 years. It's been a pretty good experience, all in all.
(I've also been on Rebif since 2000 and it's been very successful).
I ran out of LDN two weeks ago and I can't afford to buy more. I've tried to see if I can buy a packet of Naltrexone (or ReVia) but the prices are unbelievable.
I can't afford a private prescription and believe it or not, LDN does not exist in Spain.
I have been told that I can get an e-med prescription from the UK, but this s just too expensive for us right now.
Does anyone know of a reasonably priced pharmacy that will sell me a packet of Naltrexone?
Is anyone from Spain on LDN and can explain it to a doctor?

I've had great results from LDN regarding my bladder. It works like it should, after years of urgency/incontinence and Tena pads.
What I've noticed, is that since stopping LDN, my bladder is still behaving itself.
I wonder if the pathways that control the nerves have repaired themselves due to the LDN?
If someone can help, I'd be very grateful.
Thanks.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 14, 2011 5:28 pm 
Offline
Family Elder
User avatar

Joined: Sun Aug 22, 2010 3:00 pm
Posts: 200
Location: Central FL ( near Ocala)
There are a few low cost pharmacies on the low dose naltrexone website. Google it.

_________________
Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 15, 2011 2:10 am 
Offline
Family Elder
User avatar

Joined: Thu Apr 20, 2006 3:00 pm
Posts: 118
Location: O Saviñao, Lugo, Galicia.
I could be wrong, and if I am, apologies.
I'm not a troll.
I really do want to restart LDN. I've asked at the LDN Trust and no one could help.
I'm even personal (as in having met them) friends with one of their mods.
I'm on the DVD with my testimony, having done an interview with the admirable Linda Elsegood.
If my problem could be solved by 'googling' don't you think I'd have done this?
My problem is that I live in northwest Spain and I can't find a compounding farmacia or a cheap pharmacy.
I need specific help, not to be given the usual thisisms cold shoulder.



MegansMom wrote:
There are a few low cost pharmacies on the low dose naltrexone website. Google it.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 3 posts ] 

All times are UTC - 8 hours [ DST ]


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  
cron


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of Multiple Sclerosis stories on Experience Project. Experience Project is community where people connect through their life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP covers over 10 million true stories about every possible life experience. Find yours!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers | Song Meanings