LDN and Copaxone

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

LDN and Copaxone

Postby stazmatic » Thu Jul 19, 2012 10:37 am

Was curious to hear from MSers who are both on LDN and Copaxone. If you fit this description, how long have you been using both for your MS? Do you feel that using both together has been more beneficial? If so, how? Do you inject the Copaxone daily or less often? Does your neuro prescribe both drugs or do you get your LDN from another source? Thanks in advance for any insight you can provide about combining these two drugs.
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Re: LDN and Copaxone

Postby patticake66 » Thu Jul 19, 2012 4:03 pm

Welcome...started copaxone as soon as I was diagnosed in 09. I took it everday for 15 months. After an MRI, my neuro put me on it every other day. Exactly 1 year after diagnosis, my neuro gave me a prescription for LDN. So now I take copax everyother day and 3.0mg LDN every night. I have no idea if any of it works. I went for a MRI in January and told my neuro not to call me with the results because there really is nothing she nor anyone else can do for me in regards to a cure. I have not had any symptoms/relapses etc. since my first diagnosis. I will not take any other medication so it is just the copaxone and LDN...but for the past 3 years I feel fine. I hope this helps.
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Re: LDN and Copaxone

Postby MSnik » Thu Jul 19, 2012 7:20 pm

Hi. Interestingly enough, my Neuro has had me on LDN for the past year, and isnt against it...however, my latest MRI showed disease activity...so tonight, he has told me he wants to put me on Copaxone as well. I asked him about every other night for Copaxone and he wants me on full 7 day therapy..I did have quite a bit of lesion activity in the last 6 months. Im dreading the Copaxone shots (I previously used Rebif) but he also renewed my script for LDN. I take 4.5 mgs of LDN every other night and 3 mgs of LDN every other night...

I cant tell you how they will work, but in his opinion, the LDN is more for symtom control- it has helped me immensely with urgency issues, sleeping issues, muscle spasms and also neuropathy pain- but the Copaxone is more for progression/ lesion control...we shall see how this works out.

Patticakes, isnt this interesting ? This morning I was sure that I was headed back to Interferons...I never thought in a million years Id be posting this right now. DO you have any issues with site injection reactions? i know most people do with Copaxone...Im very thin and had problems finding places to inject 3 times a week on Rebif...his answer? Eat more icecream...

Hugs,
N
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Re: LDN and Copaxone

Postby patticake66 » Fri Jul 20, 2012 6:06 am

When I started copaxone, I had swelling, huge itchy welts that lasted for days. That quickly subsided and just a small red spot with a slight sting is what I was left with. For the past year, I have no reaction to the shots. In the beginning I shot in my arms and upper thighs...it hurt. I only did this a couple of times and stopped. What I did notice was discoloration left in my thighs. I was so upset about this. I couldn't wear shorts etc. and started to get depressed. I didn't know what the spots were. It turns out they were "ghost" spots or leftover medication that eventually disapated and my legs are back to normal. Thank goodness I stopped because lipotrophy could have set in. I stopped using the autoinjector and now I only inject in my stomach, sides of my stomach and occasionally the buttocks. That is it. There is no lipo and I get no reaction from the shot. I am not skinny but I am not fat. I am the perfect weight for my height....5'7...149lbs. I have the most fat around my middle so I reach back, above my hips and inject there...no problem. I have a "fatty back" and for years I hated it but now it comes in handy. I think not using the autoinject helps alot also. Now when I take the shots, I walk away not even feeling like I took a shot. It is totally painless.
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Re: LDN and Copaxone

Postby notagain » Fri Jul 20, 2012 6:34 pm

I have been on 3 mg LDN for 1 month and Copaxone for going on 3 months now. The LDN has helped with the bladder like everyone else says and I do get crazy dreams pretty much every night from it but I do sleep the whole night through now and no more waking to go to the bathroom in the middle of the night :) Other than that I can not say much because I have not been on either long enough to properly comment. I will post again if there are any changes or updates.
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Re: LDN and Copaxone

Postby BaileyC » Fri Aug 17, 2012 6:46 pm

For what is worth ... I have had MS since at least 2006 and had it confirmed in 2010. I have been on Copaxone, every other day for two years (many studies state it is just as effective as every day) and had another Dr. (he is an MD who practicies hollistic medicine) suggest LDN about a yr. ago .. both Doctors have different view points but were not opposed to combining them. I decided to combine both drugs to try to stay ahead of my MS. So far, I feel just fine... actually, quite normal.
I do a variety of excercise (at a minimum I walk the dog 30 minutes), eat well, get a lot of sleep and keep a positive attitude. So far, so good... I am blessed that all is well.
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Re: LDN and Copaxone

Postby BaileyC » Sat Mar 09, 2013 8:49 am

I have been on 3mg of LDN for two years now (4.5 mg made me feel on edge and jittery) and also take Copaxone 3 days/week.
I have RRMS and have had no new lesions or changes in my MRI in 2.5 years and feel really good. Perhaps it is pure co-incidence or the drug combination? Regardelss, I plan to continue on this path for now!!
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Re: LDN and Copaxone

Postby patticake66 » Mon Mar 11, 2013 9:05 am

I have also been on LDN 3mg (for three years) and copaxone every other day. First attack in March '09. No new lesions or attacks since then. I believe it is the LDN.
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