This Is MS Multiple Sclerosis Community: Knowledge & Support

did you take her/him research? or gave a persuasive speech about how LDN would benefit you and your particular circumstances? just trying to figure out what has been working for others so that i can try it

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Dx: 9/8/11 RRMS
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copaxone x3: let's hope the third time is the charm!
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I am not on LDN, and did not really find it to reduce my symptoms. If Anything, it made me very stiff the following day.

I got my script for it from my GP. He had prescribed Naltrexone at full dose previously for alcohol or heroin treatments. I have known him for a while, he knew there were few treatments for my MS and so he was compassionate to my situation and the other thing that made him very comfortable with it was just how low a dose was involved. He basically thought it would do nothing, so there was no harm.

Good luck.

FYI, LDN increases ACTH release. ACTH causes cortisol and aldosterone release. Cureorbust's increased stiffness might be attributable to aldosterone as it has been proven to increase muscle tension in the heart and is suspected to cause increased tension in other muscles. People seem to need to find a very specific dosage for LDN to be helpful. I think this is because it also increases release of luteinizing hormone which increases progesterone levels. Progesterone blocks aldosterone and cortisol receptors. You have to find the dosage that creates a net decrease in cortisol and aldosterone activity in order to have good results.

Personally, I wouldn't go this route. We already have enough issues with excess cortisol and aldosterone. That said, a lot of people take it so maybe it is worth it.

I did a bit of both.

Prior to going to the appointment, I went to the only compounding pharmacy in my town and found out where they get their LDN powder, what they use for filler, how much it costs and a round about number of how many LDN scripts they fill.

I brought the doc some info found on the web that she barely looked at. Then I was brutally honest telling her that nobody knows much of anything about MS. I suggested that the way it works is this: If the Extavia the neuro is pushing seems to work, he pats himself on the back for being a genius. If it doesn't he switches drugs. Nobody knows if success or failure is just due to being in remission. I didn't think that screwing with my immune system and the long list of side effects was a good starting place.

LDN has none of the problems and stands just as good a chance of doing something good as anything else and if it doesn't seem to do anything, I'll try Extavia after 6 months of LDN.

I don't know why but my cognitive problems cleared up right away. Physically nothing has changed much with balance and numbness and all that stuff. I can live with that and I'm still popping my LDN @ 1.5 mg 8 months later.

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