Experiences with Low Dose Naltrexone

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

ldn

Postby leetz » Tue Jan 12, 2010 8:34 pm

this i can say.......not as much spastisity when i was taking3mg...4.5 i was much more spastic......
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby sbr487 » Wed Mar 03, 2010 3:27 am

I started a week back

day 1 - I felt as if my health was reversed by 7 years
day 2 - still the same (feeling good)
day 3 - moderate spasticity
day 4 - more enhanced stasticity
day 5 - same as day 4

At the end of first week, I had a day when I felt almost same as before.
The next day (today) I felt slightly better. Still nowhere near day 1 and 2.

I read somewhere that it will only improve mental health quality but I have seen less spasticity after taking it.

I will continue this since in general it is better than not taking anything (I dont take any other med except cod liver oil)

My opinion after a week is that LDN is not a solution but is better than many medicines out there ...
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Postby SandyK » Sat Apr 03, 2010 5:28 pm

I am now on six months of LDN 4.5mg and I have no change to report.
Diagnosed 1994, Self EDSS is 6.5
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Postby sbr487 » Thu Apr 08, 2010 2:42 am

Its been probably 2 months now.
I feel much more stable than before.
I still have lot of MS symptoms but overall my health is better than what it was before taking LDN.
I am also more positive now. I feel less tired.
My thumbs up for LDN.

But let me say that it surely does not solve all MS issues but somewhere I do feel that either progression has halted or rate of progression is very slow.

Thanks for all those souls who chipped in when I needed info on LDN (Algis etc.)
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Postby Algis » Thu Apr 08, 2010 3:32 am

Glad to have been of any help - Cheers and keep fighting :)
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My experience of LDN

Postby cara28 » Sat May 29, 2010 9:48 am

Hi everyone,

Just wanted to post my experience with LDN so far. I have just finished my first month of it.

A little background.... I was diagnosed with MS in July last year after a very sudden onset of symptoms. Most cleared up pretty well (walking difficulties, speech problems, co-ordination etc) but I was left with overwhelming fatigue. I was unable to work or make definite plans to do things as my energy was so tricky. My head was also so fuzzy - felt like I was walking around in a dream a lot of the time!

I went on LDN a month ago. At that stage, my fatigue was still extremely debilitating, I had real problems in the mornings (a lot of spasticity in my legs, it took so long to get going in general, and my balance was always dodgy when I first woke up - a lot of staggering around!), I was really struggling with having a foggy head, and I had a lot of pain in my right arm.

After a few days, my fatigue had been gobbled up almost completely - I couldn't believe it!! It had been so crippling for close to a year! The spasticity problems in my legs were gone, my balance was far better, and all my cog fog was gone! Absolutely amazing. I feel like I have my life back to some degree now! I have been able to work, and while I'm still more tired than I would have been in the past, it is nothing in comparison to the level of fatigue I was experiencing daily before LDN. The pain in my hand remains unfortunately, and tingling in my head is still an issue, but I am just so glad that the fatigue is more manageable!

I don't want to put it down entirely to LDN - at around the same time I started taking it I got a lot of prayer from my friends, which I am a big believer in the power of! I think LDN has played a massive role in my improvements though!

Only side effects I experienced was sleeplessness on a couple of nights close to the start, and very vivid dreams (which, to be honest, are quite fun and I wouldn't complain about!!).

I'd highly recommend LDN based on my experience!

:wink:
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Postby sbr487 » Mon Jun 21, 2010 1:34 am

It has been around 5 months now.

+ves
1) My headaches which had almost become daily affair have almost vanished
2) Fatigue is much less
3) Body pains have almost vanished
4) A little more brain clarity
5) less tired even if I sleep just 6 hours a day

-ve
1) still have days when I have problems in the morning
2) brain fog not completely gone

Caveat:
I have started taking walnut daily now and I have a feeling that it is helping me. Looks like it is directly related to blood flow ...

Take care all ...
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Postby Algis » Mon Jun 21, 2010 5:04 am

@sbr: I'd say please do not stop if it does not give any adverse effects; even after years I still can find things that I wonder they are (or not) due to regular LDN intake (positive).
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Postby sbr487 » Mon Jun 21, 2010 5:36 am

Algis wrote:@sbr: I'd say please do not stop if it does not give any adverse effects; even after years I still can find things that I wonder they are (or not) due to regular LDN intake (positive).


Thanks, Algis ... I would be a fool to stop using LDN though I regret having come to this forum so late (2009) ...
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LDN

Postby KDGO » Sun Jun 27, 2010 12:47 pm

Would users of LDN let me know how it helped with their weak legs/mobility? I do not have that fatique that I had when diagnosed 6 years ago when I couldn't stay away almost mid sentence

Thanks
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Postby snails » Sun Jul 11, 2010 4:03 am

Hi there, I hope someone can help me...I started LDN 18, April 2010 @1.5 mg, then went up to 3mg 24 April 2010. I started feeling much better, and then 18, June I went backwards, after I missed one dose, and have been having a relapse/flare for the past 5weeks. :cry: No one seems to know what brought this on..my GP doesn't know much about it as I am the 1st person shes prescribed for, and the compounding chemist doesn't have any ideas either....both don't think missing a dose would bring on a relapse and nothing else has changed in my life as far as stress etc...any suggestions?
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Postby Algis » Sun Jul 11, 2010 4:19 am

Please try to go back 1.5 for few days; then go up to 3.0 again.

But I do not think LDN 1 shot's miss would have trigger that bad relapse (tho I honestly am not sure).

Try searching for skip's pharmacy and try to call Skip - He's a LDN specialist.

Hope this will help; be well and good luck!!

Algis
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Postby snails » Sun Jul 11, 2010 4:43 am

Thanks for that, I'll give that a try
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Postby harpgirl » Tue Jul 20, 2010 7:32 am

I take 3 mg before bed and love the results. I am off my pain meds (still struggle with pain-not as much, but don't like the sedating effects of the pain meds.) Off cymbalta too.

I will say taking LDN is a delicate balance as everything pretty much seems to interfere with it.

If I have a little bit of sugar, it makes me have a huge problem with yeast. LDN can do that. When yeast is a problem, LDN quits working.

Then you have to make sure you aren't taking any drugs that make LDN not work. I was taking clonazepam to help me sleep and then realized it makes the LDN not work. You can google LDN and drugs you can't take with it, to see the list. It is surprising. All I knew is you couldn't take narcotics with it.

I took prednisone with it once; bad, bad, bad. Had a horrible experience, just to say I don't recommend.

When it works, it is great. I have to work at keeping it working and do nothing to sabotage it. It helps with pain and energy the most with me, and helps me dream (something I never ever did for 10 plus years.)
-<em> Cindy (aka Harpgirl)</em><br />
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Postby Algis » Tue Jul 20, 2010 8:30 am

So glad girl; keep harping :)
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