ccsviindia wrote:Thanks Tracy.
I have read so much against CRAB that it is hard to go for it. Possibility of 30% reduction in number of relapses. Does is also slow down progression....
On the other hand, have read so much positive about LDN, CCSVI, Diet, yoga. Should I insist with doctor for CCSVI...what was your personal experience....
Does 30% reduction a good deal to go for interferon which weakens immune system - 52 days a year there will be flu and possible depression....or these side effects are not that real....
Just can't make up my mind...very confused...
Hi ccsviindia, and welcome! Yes, it's very confusing to make your way through the pros and cons of treatments. It would be much easier if we weren't all so different in the types and stages of MS, as well as the rest of our health. I, like many of us, am plagued by several other medical conditions that are probably having even more of an effect on me than MS. We're all completely unique.
I won't give any treatment suggestions, but clarify some points for you.
I have read so much against CRAB that it is hard to go for it. Possibility of 30% reduction in number of relapses.
That's not actually the case with the CRAB meds
. It's not that everyone who takes the CRABs has a chance to lower their number of relapses by 30%. The truth is that during drug trials all 4 CRABs came up with an average
percentage of around 30% fewer relapses - in the trial group. And it's usually stated that the average number of relapses is only about 1 a year. That makes it 30% fewer than one.
So....that means that some in the trials may have had a great result, some may have become much worse, some remained the same. There's no way to tell which med would "work" for you or even if it has
"worked" for an individual patient. I was just told to pick a med, it doesn't matter which one.
There are individual forums here with research and experiences on each of the main treatments, and also on CCSVI, which is actually in the beginning, investigational stages
of experience. The CCSVI treatment
isn't yet standardized, doctors are in disagreement, and many insurance companies won't cover it. It's so early in the discovery phase that the field changes constantly. You should study CCSVI thoroughly before you invest thousands of dollars in a treatment that may not help or may need to be repeated regularly. No one knows for sure yet.LDN
is also a treatment that hasn't been studied well, so most reports are anecdotal. I took it for a year and thought it helped some symptoms, but its 'claim to fame' is supposed to be stopping progression. In my case, I was healthy going into that year, and halfway through it I progressed to using a cane. I've continued to progress since then. Since LDN made me feel so good, I hate to blame it, but geez! My doctors refuse to give me a scrip for LDN anyway.
On the other hand, a healthy diet and plenty of exercise will help your overall health, and would go along with any other treatment choice.
Good luck to you!