I have been taking LDN and ONLY LDN since my diagnosis in 2004.
I'm a 52 year old female. My prognosis was terrible. I had seen as least four different neurologists, including one who was supposed to be a Regional M.S. Specialist. I was told that I would be paralyzed from the neck down with 4-5 more exacerbations because I had lesions in brain & spine. I was prescribed 3 out of 5 of the CRABs and Tysabri. I refused all after reading about the side effects and effectiveness. Furthermore, it simply made no sense to me to suppress an immune system that was already out of whack...well at least that's one of the theories.
My experience with 10+ years on LDN has been great. I am still walking - celebrated 10 years of "still walking" in June 2014. I did have some exacerbations these past 10 years averaging one every 18 months. I've had periods of blindness, considerable pain, which has been a constant since day one, I've used both a scooter and a cane. Last week I walked two miles!
Let me just say that LDN alone has not been the reason for my improvements and success;however, LDN contributed significantly to my reduction in exacerbations and improved energy levels.
The greatest factors attributed to my continued success is a strict healthy diet with supplements, chiropractic & massage therapy.
If I skip LDN for more than a few days, my energy levels decline. If I skip chiropractic & massage my pain & stiffness levels rise. However, the greatest imprpvements were made with chiropractic. After chiropractoc treatments 3x a week for 4 months, I was able to dress myself, put on make up, walk & drive my car again! I always tell people my chiropractor gave me my life back...and no I am NOT a chiro. In fact, I am a returning poster to this site. I just can't remember my former username...maybe "remnants". I met the doctor who prescribes my LDN on this site on the forums. Dr. Bozena Jurek - great lady
I have no adverse side effects from years of taking LDN aside from some insomnia after I skip a few days. I attribute my positive attitude, energy & lack of exacerbations to LDN!
Hope my story helps someone out there oh and be sure to look up Dr. Terry Wahls for healthy diet information to coincide with your LDN...and find yourself a good chiropractor!