This Is MS Multiple Sclerosis Community: Knowledge & Support

I have been on 4.5mg of LDN since June 3rd. Before beginning LDN, I slept eight to nine hours a night. Now, I sleep approximately six hours a night. Once I awaken, I can't go back to sleep. I'm not really any more tired than I was with eight to nine hours of sleep. I am just curious if anyone else has experienced a shorter sleeping pattern once they started LDN.

I have; I went down slightly in dosage and then slowly titrated back up to 4.5 ...I also use stuff that helps me sleep.

cleo,
just curious, was your doctor open about doing LDN and where did you get it from.
thanks.

I agree with Daunted. Maybe you should request 3 mg. and then ease yourself back into the 4.5...My son is using 3 mg. for 2 1/2 months and says he is sleeping better than he ever has in his life. And I believe him, you should hear him snore!

Take care!

Kim

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Kim R.

I started taking LDN (3mg) two nights ago and have had very framented
sleep since then. I don't feel anywhere as groggy/bad as I normally would. I read that this could occur for 5-7 days initially, before good sleep patterns appear. Has anyone had this experience? I'm also feeling something akin to hot flashes periodically.

Hi, Janice. Alot of people have difficulty sleeping at the beginning, but it usually resolves itself fairly quickly. Most of these people say the same thing my son says, that they sleep more soundly, once they get used to the medication. You might want to alter the time you are taking the LDN and fool around with it a bit that way. Alot of people think you have to take it right at bedtime, and you don't. My son takes his at 9:30 p.m., no matter what his bedtime is. (Let me get real here...He takes it between 9-10 p.m. unless I am standing on top of him telling him to take it!) When we first got the script, I thought it had to be taken at bedtime, too, but everyone told me that wasn't the case. It works with your bodies natural rhythm, and sometimes it takes experimentation to decide what time is best for you. I found this out on the yahoo LDN support group, where there are many many people using LDN. We started out with 9:30 p.m., and just got lucky, I guess, because it has never intefered with my son's sleep at all. As for the hot flashes, that is something I am not familiar with. Did you talk to the doctor who prescribed it? Are these only at night or during the day as well? Could it be that you are perimenopausal and it is just a coincidence???

I'm glad that the lack of sleep doesn't seem to be taking a toll on you during the day. At least you have that to be thankful for! If I were you, I would just try to ride it out and see what happens. Good luck! And please keep us posted!

Kim

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Kim R.