First time poster here. First, a little background:
37 y/o male, SPMS Dx 11/01. Drugs tried: Copaxone, Avonex, Rebif; none of which seem to work, and all of which made me miserable w/ side effects. Not taking any frontline MS drugs @ present. I've had 6 or 7 courses of IV SoluMedrol over the last several years, each one with less desired effect than the one before. I currently take Adderall XR for fatigue (20mg BID) and Baclofen (10mg TID), plus supplements, and herbal & homeopathic remedies.
I was hospitalized w/ pneumonia & septic shock in 1/07, on a ventilator in ICU for 4 days, then a week on a regular hospital floor, then 3 weeks in acute rehab. According to my neuro, there was some new damage as a result of all the fever & infection, but no new lesions. I never went back to work, & am currently on disability. I recovered about 80% of my pre-pneumonia function.
My wife first read about LDN online a month or so ago & got me curious enough to try to get it. Just had a neuro appt today, and he wrote the Rx after a 30 second conversation. No fight involved at all. According to him, he doesn't advocate it, but doesn't stand in patients' way if they ask for it; yet doesn't believe there's any credible evidence to support its effectiveness. Took the script to a local compounding pharmacy & it'll be ready in the morning. $75, asuming insurance won't pay. Looking into lower cost venues for the future.
I'll post here weekly for a while whilst I give it a go.