Thought I would let you all know that I decided to go on LDN. I started last week at the 1.5 mg dosage. Thanks to the LDN website and the links to Crystal's website, I was able to find a prescribing doctor, who coincidentally spoke at the 2007 LDN conference - Dr. Terry Grossman. Dr. Grossman has me on the 1.5 mg dosage for 30 days, and then I will go to the 3.0 mg dosage for the next 30 days. I will go for a follow-up at the end of the 60-day period.
I decided to try the LDN because I felt like I was slowly (very slowly) losing strength in my left side. I have SPMS so there really are very few medications which are proven and/or empirically shown to slow the progression or alleviate symptoms. As I have mentioned in the "Device" Forum, I have a WalkAide which was one of the best decisions I've made. That being said, it was important to me to try and stop the progression.
The first week has been uneventful. I have noticed that I wake up about 2 am in the morning (I normally sleep soundly the entire night). So, hopefully, that will resolve itself as my body gets use to the endorphin increase. I also have noticed a few days with better balance, which encouraged me to walk a little farther. I play 9-holes of golf tomorrow - maybe the LDN will be my "secret" to a better game (I can hope, can't I?)
It was great to have the LDN Forum on ThisisMS to help me as I researched the medication. Lots of medical and personal information within those posts. Thanks to all of you!
I will keep you updated as to any changes in my MS symptoms.